Get a Ringside Seat for Invest in ME’s 10th International Conference on 29 May
This Friday, 29 May sees the tenth International ME Conference put on by UK research charity Invest in ME (IiME) in London. The day-long conference will include 220 participants from 17 countries and will be attended by researchers, clinicians and patients.
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Inflammation

Discussion in 'Pain and Inflammation' started by Xandoff, Apr 24, 2013.

  1. Xandoff

    Xandoff Michael

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    Northern Vermont
    I believe all my pain comes from inflammation. What specifically pointed to your inflammation?
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Hi,

    I don't have pain but I do have high IL 8 and did have high C4a and sCD14--I am waiting for the results from my recent tests. I am not an expert on these tests (by any means!) but I know that the first is an inflammatory cytokine and believe that the other two are related to inflammation also.

    BTW, after a year of treatment, C4a and sCD14 were almost in range so I am very interested to see the results of my latest tests. I think prostaglandins were also measured in the tests I am waiting for.

    Sushi
     
  3. Xandoff

    Xandoff Michael

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    Northern Vermont
    I first came down with severe neck and back pain, I was diagnosed with thoracic outlet syndrome and did physical therapy without relief. I was put on Vioxx and my pain was gone for about two years. The Vioxx gave me an ulcer and things quickly went downhill from there. I think the Ulcer opened me up to ME. IMHO I have not had a day without pain since early 2003.
     
  4. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Sorry to hear that, sounds horrible!

    GG

    PS Should another thread be started looking for feedback? People might not see it on this "older" thread.
     
  5. JT1024

    JT1024 Senior Member

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    My C4a is extremely high (over 35,000) and I'm still trying to figure out what it means. My doctor wants me to see a Lyme specialists since I recently had a positive WB (Igenex) and high antibody titers to Babesia, and Anaplasmosis.

    He was excited since he said the high C4a explained while I feel so horrible. Other doctors of mine aren't as "excited". I'm still figuring out what to do next.
     
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Yes, this is difficult!

    My C4a has come down to 1387 so it is now in range, but yes, yours is extremely high!

    I wish you the best with treatment decisions.

    Sushi
     
  7. JT1024

    JT1024 Senior Member

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    Massachusetts
    Are you positive for Lyme?
     
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I am waiting for PCR results but I am negative by the Infectolab LTT test.

    Sushi
     

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