Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Infectious Diseases 4e chapter: Chronic Fatigue Syndrome by van der Meer & Bleijenberg

Discussion in 'Latest ME/CFS Research' started by Snow Leopard, Dec 5, 2016.

  1. Snow Leopard

    Snow Leopard Hibernating

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    I'm not sure if this is simply an updated chapter for the 4th edition, which is officially released in 2017.

    http://www.sciencedirect.com/science/article/pii/B9780702062858000708

    Those of you who are familiar with van der Meer and Bleijenberg don't need to read it, you already know what it says. I'll save you the trouble by listing key points below.

    Notable omissions are any discussion of post-maximal-exercise testing or the 2-day CPET. Likewise, almost nothing about POTS or autonomic dysfunction.

    Oh and this very strange mistake:

    Reference 84 is of course: Fluge Ø., Bruland O., Risa K., et al.: Benefit from B-lymphocyte depletion using the anti-CD20 antibody rituximab in chronic fatigue syndrome: a double-blind and placebo-controlled study. PLoS ONE 2011; 6(10):e26358.

    Now how they confused anti-CD23 (lumiliximab) with anti-CD20 (rituximab) and the mention of T helper 17 pathway shows you how little thought they put into trying to understand this therapy.

    Oh and:
    citing themselves: Knoop H., Bleijenberg G., Gielissen M.F.M., et al.: Is a full recovery possible after cognitive behavioural therapy for chronic fatigue syndrome? Psychother Psychosom 2007; 76:171-176.

    Yeah, you knew they would say that didn't you!

    The wonders of avoiding pre and post-peer review (book chapters)!
     
    Last edited: Dec 5, 2016
  2. Solstice

    Solstice Senior Member

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    The recovery rates for CBT can go up to 70%, depending on the definition of recovery

    Somewhat funny.
     
  3. IThinkImTurningJapanese

    IThinkImTurningJapanese Senior Member

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    It would be hilarious, if it wasn't so tragic.
     
  4. Gijs

    Gijs Senior Member

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    Not depending on the definition of recovery also dependig on selection, Oxford is not CFS! If we use rituxmab and we use a lower rate for the definiton of recoverey maybe this drug can make 85% of the CFS patiënts better! Vd Meer and Blijenberg are no real scientists, they are clowns and charlatans. They are obsessed by CBT and fatique because it makes them a lot of money (fundings).
     
  5. sarah darwins

    sarah darwins I told you I was ill

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    So it's okay for me to use this line to sell my magic beans? Great.

    Sarah's Magic Beans - only $5,000 / bag

    Guaranteed up to 99% recovery from ME/CFS!!
    (depending on the definition of 'recovery'*)

    * This week I'm mostly using the "feel exactly like I did before I ate them only maybe a bit nauseous" definition
     
    Hutan, Molly98, NL93 and 24 others like this.
  6. Sidereal

    Sidereal Senior Member

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  7. A.B.

    A.B. Senior Member

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    Why not go all the way and do it PACE style? Recovery defined as anything better than a slight worsening. :D
     
  8. Cheesus

    Cheesus Senior Member

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    You should write to them to highlight their error.
     
  9. Cheesus

    Cheesus Senior Member

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    Ribbit.
     
    Luther Blissett likes this.
  10. Snow Leopard

    Snow Leopard Hibernating

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  11. Snowdrop

    Snowdrop Rebel without a biscuit

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    "The recovery rates for CBT can go up to 70%, depending on the definition of recovery"

    This statement is so ridiculous that it was laugh out loud funny. :rofl: Until I consider the fact that people might actually accept the statement as reasonable. :rolleyes:
     
  12. Valentijn

    Valentijn Senior Member

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    I don't think anyone would think that is reasonable, except the delusional people making the statement. Normal people don't think that "recovery" can be defined in various ways - if someone is recovered from their disease, that is recovery. It looks dodgy as hell to suggest that we can get different success rates if we fudge around with how we define recovery.
     
  13. Snowdrop

    Snowdrop Rebel without a biscuit

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    You're right of course but I think that there are people who will believe simply because an authority spoke and said that's how it works. There are plenty of people who don't have any understanding of science. It was these people I was thinking of.
     
    Last edited: Dec 5, 2016
  14. Hip

    Hip Senior Member

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    It's incredible how psychologists and psychiatrists can get away with making such a fudged statement.

    If they were selling a drug, the FDA would come down on these psychiatrists like a ton of bricks for making such dubious and misleading claims.

    What we really need is for the FDA to also regulate medical psychological therapies such as CBT, and hold these therapies to the same standards of evidence that they apply to other medical treatments and interventions.

    The FDA often respond to and close down websites or product advertising making false or misleading claims about a drug or other medical treatment. For example, here is what the FDA say about false or misleading product advertising:

    Prescription Drug Advertising > Incorrect Product Claim Ad


    We need the same regulations and the same standards of rigor applied to the claims of medical psychological therapies.
     
    Last edited: Dec 5, 2016
  15. sarah darwins

    sarah darwins I told you I was ill

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    Exactly. That was kind of the point I was making with my 'magic beans' bit of nonsense. If I tried selling something that way I would soon be hearing from Trading Standards or the Advertising Authority here in the UK (it happened to the Lightning Process guy for making unsupported claims about recovery). But apparently it's just fine for people to advance their careers in the national health services and academia by using exactly the same tactics. Something very wrong here.
     
  16. Sean

    Sean Senior Member

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    Gee, I can't imagine whose fault that is.

    As is true for every single disease or disorder humans suffer. Or indeed probably every single phenomenon in this world.

    Congratulations, you have just discovered the concept of causation. The one that the rest of us discovered a few millennia ago. Do try to keep up.

    Straight fraud.

    I can understand how this irresponsible drivel might have made its way into a hopelessly compromised psych manual, but an infectious diseases manual?

    The editors of that book should be ashamed of themselves, fired on the spot, and told to go clean toilets for the rest of their careers. Might need some training for that though.
     
    Last edited: Dec 6, 2016
  17. alex3619

    alex3619 Senior Member

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    [Satire] We could make em go up to 100% with just one visit, and no treatment at all, by making the definition of recovery that they are still breathing at the end of the first visit. So what? Umm, at least I hope so, don't want anyone to stop breathing.

    Realistic recovery definitions, with objective criteria, are what count.
     
  18. BruceInOz

    BruceInOz Senior Member

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    So they admit other researchers have reached conclusions that differ from theirs but then assert that those holding different views should just go away because any view other than their own is damaging to patients.

    Yeah right!
     
  19. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    As I often do, I am eating while I read this forum. There should be a warning to avoid threads like this while eating. :vomit:

    I would not want to use a toilet cleaned by these people. I do not think you could ever train them to do any work carefully and correctly. :nervous:
     
    Luther Blissett likes this.
  20. Sean

    Sean Senior Member

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    Yeah, I was suffering from a touch too much civility and generosity towards them.

    Old habits die hard.
     

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