Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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In Memory of Tom Jarrett

Discussion in 'In Memory of ...' started by Sushi, Jul 24, 2016.

  1. Sushi

    Sushi Senior Member Albuquerque

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    upload_2016-7-24_21-32-58.png
    From his wife:
     
    paolo, mfairma, RivkaRivka and 14 others like this.
  2. Esther12

    Esther12

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    He openly posted as @OneWaySurvival

    Very sad. This must be so hard for his family.
     
    Last edited by a moderator: Jul 24, 2016
    RivkaRivka, L'engle, Comet and 6 others like this.
  3. Sushi

    Sushi Senior Member Albuquerque

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    upload_2016-7-24_23-22-38.png

    RIP, Tom​
     
  4. Kati

    Kati Patient in training

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    I am feeling incredibly sad for his family. What a tragedy. :(:(:(
     
    paolo, Marky90, taniaaust1 and 11 others like this.
  5. Justin30

    Justin30 Senior Member

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    Rest in Peace Tom I hope you are in a place where you are free.

    Kindest and heart felt regards to your family and loved ones.

    So sad :(
     
    RivkaRivka, Gingergrrl, Comet and 6 others like this.
  6. Sasha

    Sasha Fine, thank you

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    I'm so very sorry to hear this. All my best wishes to his family.
     
  7. Keela Too

    Keela Too Sally Burch

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    So very sad that good people are given so little medical care that their only real escape is to take their own lives.

    Thinking of his family now. Rest in Peace Tom.
     
    RivkaRivka, Mary, perrier and 12 others like this.
  8. Sean

    Sean Senior Member

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    More unnecessary loss and sadness.

    :(:cry::(:cry::(:cry:

    RIP Tom J.

    Deepest condolences to his family and friends.
     
  9. Effi

    Effi Senior Member

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    Rest In Peace Tom... :(
     
    Marky90, Gingergrrl, Comet and 4 others like this.
  10. AndyPandy

    AndyPandy Making the most of it

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    Another heartbreaking loss.
     
    Marky90, perrier, Gingergrrl and 4 others like this.
  11. shannah

    shannah Senior Member

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    A tragic loss ...

    Condolences to his young family.
     
  12. Daffodil

    Daffodil Senior Member

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    speechless, numb; angry
     
    RivkaRivka, Marky90, perrier and 3 others like this.
  13. Bob

    Bob

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    Very sad news. I didn't know Tom personally, but he was a well-known.and respected member/friend of the community.
     
    Marky90, Never Give Up, Comet and 2 others like this.
  14. Gingergrrl

    Gingergrrl Senior Member

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    I am so saddened to hear this and back in 2015, I had a lengthy PM back and forth with Tom re: a project he was working on and I was interested in trying to help him.

    Although I did not know him well, what came across through those PM's (I just re-read them) was how dedicated he was to our community, what a kind, thoughtful, and creative person he was, and how much he loved his wife and two boys and how much he wanted to get better to participate in life with them. I related to him so much and we have truly again lost one of the good guys to this damn disease.

    Even though I only chatted with you briefly many months ago, you made a real impression on me. Tom, may you be at peace, in no more suffering or pain, and may your memory be a blessing of comfort to your wife and boys.

    upload_2016-7-25_13-49-14.png
     
  15. Navid

    Navid Senior Member

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    This is breaking my heart and making me very angry. First I am sorry that Tom was so very ill and hopeless that the only answer he had was to take his life. My tears fall for his wife and children. Why must a man and his family suffer so much with no good medical help. It is a crime that this, good, kind man had to leave behind his loving family in order to escape the torture of this disease.

    What is it going to take for our pain to be taken seriously. We have heard for years and years now that breakthroughs are coming. Well, as we have witnessed over the past 6-8 weeks many us our losing the will and/or strength to hang on to empty promises of hope anymore.

    I do not understand why not one single new treatment has been offered to ill patients in all these years. When we first become sick we run around like maniacs trying to get well; never believing that an illness noone takes seriously can bring us down so hard. Then after years and years of fruitless efforts we become shells of ourselves, broken, sad people who try to keep on living another day for our families...but as is seen over and over again, this can become impossible.

    I know there is more research being done then ever before but the results that come out are meaningless to those of us hanging on by our fingernails to life if there are no new treatments proposed.

    When Lipkin first became involved, he said with a million $'s he could solve this disease. Well that was years ago and relatively very little has come from his lab, nothing that has been of any help to the sickest of us.

    How many more of us must die and leave behind our loved ones before a treatment is found.

    Dear Tom and Family: I am so sorry you suffered through this nightmare. I will not say that Tom is in a better place...because he is not..the place he belonged was with his family....but I do understand why he left, it's very hard to keep hanging on day after day in pain with no hope.....I am so sorry for your pain and loss.

    Please, please, please let Tom's death be a loud siren to the researchers, doctors and government....we need help and we need it now!!!

    RIP Tom
     
    belize44, ghosalb, Marky90 and 20 others like this.
  16. Gingergrrl

    Gingergrrl Senior Member

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    @Navid, wow your post was so powerful, it made me cry. Please know you can always send me a PM if there is anything I can do, even if just to listen. And I agree that the place that Tom was supposed to be was with his family but since that could not happen, I am hoping and praying he is in a better place now, even though I wish he could just be here, and that we could all just be here, only without the suffering.
     
    Last edited: Jul 26, 2016
    AndyPandy likes this.
  17. Groggy Doggy

    Groggy Doggy Building a New Home

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    I agree, millions of dollars are spent on research, with no treatments to show for it. While private doctor's, with no funding, have produced treatments (but they are ignored by the researchers)

    And the wheel spins round and round, and the years go by, and more people die.

    Tom, I am so sorry you felt like you had no other options.

    GD
     
    justy likes this.
  18. Snowdrop

    Snowdrop Rebel without a biscuit

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    So heartbreaking.
    My deep condolences to his family for their loss.
     
    Comet likes this.
  19. barbc56

    barbc56 Senior Member

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    My condolences to Tom's family. So very tragic.
     
    Comet likes this.
  20. Sushi

    Sushi Senior Member Albuquerque

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    In lieu of flowers, memorial contributions may be made in Tom’s honor to a Trust Fund for his sons, Austin & Andrew; or research for his illness, ME. Checks can be may payable to "Trust Fund for Austin & Andrew Jarrett" and mailed to College Park Church Compassion Ministries, 2606 West 96th Street, Indianapolis, IN 46268. Donations can be made online for ME Research: End ME/CFS Project atwww.openmedicinefoundation.org/donate-to-the-end-mecfs-pro…/

    http://randallroberts.com/…/2692/Thomas-Jarrett/photos.html…


    [​IMG]
    Photos of Thomas Jarrett
    Thomas W. Jarrett, 39, of Westfield, passed away on Friday, July 22, 2016 after battling a debilitating disease for nearly a decade. He was born on April 16, 1977 to Paul and Marty (Alley) Jarrett in Indianapolis, IN. Tom's faith and love of his Savior, Jesus Christ, was evident to all who knew him....

    You can add your condolences here.
    RANDALLROBERTS.COM
     
    Last edited: Jul 26, 2016

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