Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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In memory of Silvia ( Spain )

Discussion in 'In Memory of ...' started by Yabisa, Apr 17, 2017.

  1. Yabisa

    Yabisa

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  2. Sushi

    Sushi Senior Member Albuquerque

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    @Janet Dafoe (Rose49) Since your family was mentioned in the above message, I am tagging you. So sad.
     
  3. belize44

    belize44 Senior Member

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    RIP, Silvia. So sad.
     
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  4. Misfit Toy

    Misfit Toy Senior Member

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    It is sad and yet I understand it all too well. No one should have to live like this. It's not living. May she be free for disease and at peace.
     
  5. Kati

    Kati Patient in training

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    Rest in Peace dear Silvia :cry: i am heartbroken you had no other option. :cry::cry::cry:
    May your requests to the health authorities of Spain be heard.
     
  6. Laelia

    Laelia Senior Member

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    So sad, I'm lost for words. R.I.P. Silvia.
     
  7. mrquasar

    mrquasar Senior Member

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    Rest In Peace.

    Know that you did not die in vain, that we have heard your final message to the world, and that we will keep fighting for better treatment for us all!
     
    Kenjie, barbc56, Aroa and 2 others like this.
  8. Snowdrop

    Snowdrop Rebel without a biscuit

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    :cry:
    I hope that authorities everywhere start to really come to grips with the continued suffering they allow by doing nothing or worse offering inappropriate treatment.

    This is so very sad. I am so sorry Silvia had no other better option.
     
  9. Yabisa

    Yabisa

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    We need somebody to TRUST what we have.
    I'm not a stupid woman.
    Something is killing us in any way
    , health mainly , but also personal, social, familiar, economic factors ..
    I really understand she didn't want to live, because that's not suposed to be a "good quality of live", with no help at all, ...
    This is hell in life...

    Somebody must tell DOCTORS they are behaving CRIMINALY at least, for their LACK of empathy, their lack of professionality, their lack , in the end, of humanity.
    NEVER in my entirely professional live I have been able to leave parents ( with disabled children ): Sorry, I don't kow about this matter. Bye.
    Never.
    I have helped them always as much as I could do my best, giving advices if asked, helping to find economic help, avoiding anxiety conforting them , thinking ways of educative helping , pointing to special doctors or therapies and this was mostly because I WORK WITH PEOPLE and they are not machines.
    But the most important thing is because I LISTEN and I am empathic, because I am mother , and I know how important is the health of a son/dougther for a parent, and more if your son has health problems.
    In this way , e
    ven if we were SIMULATORS ( threre must be millionaire reasons to affect so much people all over the world... ), Medical staff and some "science" MUST BEHAVE , at least, correctly with patients RESPECTING THEM. And they don't do that.
    They laugh behind us, ( we are poor people, mentally ill - in Spain we say " La razón para los tontos " - give fools always the reason ), they feel superior to us ( because we don't know "science" , medicine, or difficult things they can understand....).
    Yes.
    They are rigth.
    But you know what?
    We are not STUPID,
    We can learn from others, share information, find real SCIENCE , colaborate with others
    and organize ourselfs for fight toghether in this cause.
    How can someone, in XXI cen., think no body is going to know so big ignominy!
    As I said, we are not stupid,
    And that hurts, really hurts.
    We have criticise their "big findings" in PACE
    No. They are not professionals.
    I understand mental illness in a more affective a respectuose way ( worked before with Autistic people, Down Sindrome, Cerebral P. Etc).
    This is OPPOSSITE what they assume when their HIPOCRATIC swear:
    RESPECT is the first LAW in ANY human relationship.

    Even If we were "mental patients", respect to us as a patients should be their first religion, and that is not real.

    Sometimes I wonder if the lack of empathy of these people is due to something really serious ( not joking ).
    I don't understand a doctor neglecting that way with a cancer patient...
    So.
    I feel sorry about Silvia .
    I didn't have the pleasure to meet her because I'm new , but I read what she wrote, and really is frustrating and really really sad.
    How many Silvias? Silvios? .
    Thanks to all for your support.
    Big huges !
     
  10. Knockknock

    Knockknock

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    Unfortunable real science is controlled by govermments, they deside to who they give the funding for research, they also suppress those who will find stuff that they dont want to be found.

    They manipulate studies.

    Doctors behave like that becouse thats what govermments and their health agencies teach them for decades, that way they can keep the disease misslead and the medical community skeptical and desinformed

    Me/cfs have not being neglected by govermments, that is wrong terminology, they have maliciously, on purpose misslead,obscured, block, limited cover up research for Me/cfs.
    Behind our illness it lays something they have been trying to cover up for decades.
    Like this youth girl only 40 years old Silvia there is many others that have taken their life's to the suffering and frustration of this illness.

    The govermments know this, they know how real this disease is from the very first day, but they have cover up, they have block, destroyed, discredit, ignored doctors and researchers that have presented evidence of how real cronic severe and physiological this disease is.
    They have rolled over those who have Found evidence of retroviral and viral etiology in the illness, the ones that have prove how chronic and physiologic, those have being denied. but they have funded, promote, lifted, rewarded those who have help them to promote the phsycological theory, they ones that have help them cover up.

    Many like this dear friend have commited suicide, you can even find their suicde videos in youtube, their staments and reasons of why they are doing it.
    Poor girl.

    I hope your valuable loss is not in vain, like many others that have loss their life to this illness, we are the forgotten plague, but one day we will all Rise, we will all understand and treat our disease like humman and not like animals we have being treated all this years.
    That day will come thanks to you and every person that have lost their life.
     
    Last edited by a moderator: Apr 18, 2017
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  11. barbc56

    barbc56 Senior Member

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    Horrific.. My condolences to Sylvia's friends and family.
     
  12. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    I'm so sorry and sad to hear this. The suffering is unimaginable.
    Rest in Peace, Silvia.
    We rededicate ourselves to finding effective treatment for ME/CFS, and to educating the medical world.
    I send prayers and condolences to Silvia's friends and family.
     
  13. Aroa

    Aroa

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    Silvia all my LOVE to you wherever you are

    I hope all your suffering will help to understand Spanish Authorities and Doctors what this illness means.

    It is very true sometimes visiting your Doctor makes you feel even worse . Not only they are not helping people but they are sinking them even more. And I want all the world to know what you SPANISH medical authorities are doing to ME people.

    Not to say when the medical authorities “seguridad social” who are the ones to check your health conditions tell you are up to work when you can´t hardly cope with your daily personal activities .

    At least we ask for a Little bit of HUMANITY and EMPATHY

    R.I.P
     
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  14. Yabisa

    Yabisa

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    You're right. Spanish health authorities are pushing to this.
    No health care , no incomes to live, no nothing...
     
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  15. slysaint

    slysaint Senior Member

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    tagging @NexusOwl (involved in advocacy in spain)
     
  16. Yabisa

    Yabisa

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    Yes. I know her.
    She is not well now.
    We work toghether in millionsmissing Spain.
     
  17. slysaint

    slysaint Senior Member

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    you mean NexusOwl ? Sorry she is not well at the moment. Send her our best wishes:hug:
     
  18. Yabisa

    Yabisa

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    Yes, NexusOwl.
     
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  19. Countrygirl

    Countrygirl I'm with Cheesus

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    Tears! :cry:.......................and, frankly, outrage!

    The medical profession world wide is a disgrace when it comes to ME.
     
  20. erin

    erin Senior Member

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    This is so sad.
    I hope she's free now, rest in peace Silvia.
     

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