My friend Nisha hung herself a year ago today. She was beautiful, funny, intelligent, and she had ME. She was in constant pain, and she was pretty ill. She had ME. She tried a lot of stuff, none of it had (yet) worked for her. In the three weeks before her death, she saw a neurologist (unusual plaque formations in the brain, not what you expect in a woman in her thirties, but nothing to worry about....), a gastro-enterologist, the endricrinologist who leads the local ME service (yes, we can offer you CBT. Its the only thing that has an evidence base) and a mental health team (you're depressed - heres some antidepressants) and her GP. She was in severe shoulder pain no one could explain. Yes, she was depressed - because not one of the professionals who might have helped her, did, because she saw no way out, and because many of the people closely involved in her life had told her to pull herself together, stop malingering, and get back to work. I dont post stuff like this much, but I wanted to acknowledge her death. I was in my GP's surgery yesterday, with the nurse trying to get blood - and the GP sent a message to me via the nurse she wasnt going to run the tests she had agreed, (viral studies, CD4 and CD8) because they had been at my suggestion, and perhaps I should return to whatever private clinic was treating me. Having ME in the UK, I have bargain basement expectations of any medical professional in the NHS helping me with it. Still, as I left, I thought of Nisha and the crazy making visits she endured to the same people. She deserved better. Thank god for PR and knowing I'm not alone.