August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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In memory of Louise Ramage

Discussion in 'In Memory of ...' started by ScottTriGuy, Jun 24, 2016.

  1. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Toronto, Canada
    I only knew Louise through facebook - ME brought us together and ME took her away.

    Louise's facebook page: https://www.facebook.com/louise.ramage1?pnref=story

    Louise's daughter's post on facebook: https://www.facebook.com/leeanne.ramage?fref=nf&pnref=story

    It is with the most sadness that I tell you all that my mom Louise Ramage has passed away. We are completely devastated. Jacobs world has been turned upside down. If there is one thing she would want from me, she would want me to tell you about her disease M.E. this took her life and we can't even handle it. We wish she was back her with us but know that she is in heaven with my dad and watching over us. We are dying inside. Love you so much and I'm sorry I couldn't do more for you.xo

    ETA: Louise (such a friendly smile):
    [​IMG]
     
    Last edited: Jun 24, 2016
    mfairma, leela, zzz and 25 others like this.
  2. shannah

    shannah Senior Member

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    Stop the Harm! Start the Treatment! Start the Research!

    May a firestorm be ignited across Canada in her honour ...
     
  3. Effi

    Effi Senior Member

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    :( RIP Louise...
     
    leela, Rrrr, Mel9 and 6 others like this.
  4. Kati

    Kati Patient in training

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    :cry::cry::cry: That's awful news. Rest in peace Louise. No more pain.
     
    leela, L'engle, Rrrr and 7 others like this.
  5. barbc56

    barbc56 Senior Member

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    My condolences to her family and friends. So tragic.

    Thanks for letting us know.
     
    leela, MeSci, Rrrr and 5 others like this.
  6. Groggy Doggy

    Groggy Doggy Senior Member

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    Dearest Louise,

    I hear you love horses...so....

    May you Ride Like the Wind!

    "It is the night, my body's weak
    I'm on the run, no time for sleep
    I've got to ride, ride like the wind
    To be free again"

    horseback.jpg

    :heart::bouquet::angel:

    GD
     
    Research 1st, leela, perrier and 8 others like this.
  7. helen41

    helen41 Senior Member

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    RIP Louise. I know you were terrified that harm would come to you as a result of being forced off of opiates for your pain.
    Whatever the autopsy says was the cause, we all know the cause was ME
     
    Research 1st, leela, Paralee and 3 others like this.
  8. Kati

    Kati Patient in training

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    That's really sad :(
     
    leela, Rrrr, Mel9 and 1 other person like this.
  9. Gingergrrl

    Gingergrrl Senior Member

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    Would it be appropriate to ask why she was being forced off of opiates for her pain?!!! This is horrible and I am so sorry.

    I did not know Louise but was brought to tears by her daughter's msg on FB posted above. What a tragic loss to her family and community.

    As I always believe, may her memory be a blessing to those who knew her and she will live on through them. Praying for Louise and her family tonight. :angel:
     
    leela, Paralee and Mel9 like this.
  10. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    If I said what I thought about that, I would probably be banned from the site. :mad::aghhh::bang-head::cry:
     
    leela, Paralee, L'engle and 2 others like this.
  11. AndyPandy

    AndyPandy Making the most of it

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    Heartbreaking.
     
    leela and Mel9 like this.
  12. Groggy Doggy

    Groggy Doggy Senior Member

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    I will say what's on my mind....WE ARE DYING OF GOVERNMENT NEGLECT!!
     
    leela, Paralee, zzz and 2 others like this.
  13. Kati

    Kati Patient in training

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    The local doctors do not believe in opioid use for chronic conditions, especially for patientsq with ME and fibromyalgia. They consider opioid use inappropriate.

    You can read the protocol from the Vancouver clinic where Louise was seen (not sure if she was currently seen or saw other doctors)
    http://www.bcwomens.ca/Professional...rotocol-Opioid Taper Discontinuation 1.1.pdf
     
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  14. Groggy Doggy

    Groggy Doggy Senior Member

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    This is so sad. There seems to be no consideration to the emotional impact nor physical addiction understanding of cutting off a patient from ongoing opiod treatment (its NOT the same thing as switching drinking from cows milk to almond milk). Sadly, my guess is that this policy will increase the suicide rate, which I didn't see a study reference for :cry::cry:
     
    leela likes this.
  15. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    In this case it was not "merely" neglect. It was intentional mistreatment.
     
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  16. Groggy Doggy

    Groggy Doggy Senior Member

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    What can we do to prevent this from happening again?
     
    leela likes this.
  17. Gingergrrl

    Gingergrrl Senior Member

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    @Kati, I "liked" your post only to acknowledge what you wrote but not b/c I liked the ideas behind it which SUCK. That clinic should be sued (assuming Louise went there and was forced off of her pain meds- which of course we do not know and is only speculation.)

    But in general, this is a horrible policy and I don't understand how a hospital or clinic can create a "One size fits all" policy vs. trying to at least attempt to meet the individual needs of the patients. I have been doing some very interesting research on opiates the last few days, which I will not post here b/c don't want to go off topic and this thread is about Louise, but plan to post later in the right place to hear what others think.

    But, if this is true, it is criminal what they did to her. RIP beautiful Louise.
     
    leela, Paralee, L'engle and 3 others like this.
  18. Daffodil

    Daffodil Senior Member

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    this is a cruel world.
     
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  19. Comet

    Comet I'm Not Imaginary

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    I am so sorry.
     
    leela likes this.
  20. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Yesterday, after Louise's daughter, Leeanne, posted this on facebook:

    "This is Leeanne St Cyr ...my Mom's daughter. I want everyone to know how much I appreciate reading your posts. I know my Mom would have been so grateful and blown away with all of your amazing words and love. Here is to ME awareness. This is a real disease that kills people. Please donate to more research regarding this matter. If we had more knowledge I still could have had a Mom."

    I reached out her, asking if I could honour her Mom and take a wreath, a photo of Louise, and copies of Leeanne's facebook notes to Minister of Health Jane Philpott's constituency office and video record the experience. This was Leeanne's reply:

    "That would be amazing, she would love that. Thank you so much."

    I'm planning that tomorrow afternoon I will go to Minister Philpott's office and ask to deliver it to her personally - I do not know if she will be there - I am planning on reading Leeanne's notes aloud - and asking Minister Philpott to respond to Leeanne and the ME community - I then plan to post the video online in honour of Louise.

    Any one in the Toronto area is welcome to join me at Minister Philpott's office.

    (ETA: Since Leeanne mentions "please donate to more research", I wonder if it would be helpful if people wishing to make a donation knew where to direct their funds? I'm not aware of Canadian researchers / orgns accepting donations. Ideas?)
     
    Cheryl Benson, leela, JAH and 13 others like this.

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