Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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In Memory of Lili

Discussion in 'In Memory of ...' started by Countrygirl, Sep 27, 2015.

  1. Countrygirl

    Countrygirl I'm with Cheesus

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    The founder of Severe Myalgic Encephalomyelitis Understanding and Remembrance Day.

    This very sad news was posted by Linda Crowhurst on the Stonebird site today.
    stonebird.png
    (Image from Stonebird--The lived experience of Severe ME--linked above)

    This is the article written by Lili's Mum on the IiME site a while ago. The behaviour of our UK health service is outrageous and a national scandal and now their young victim is dead. Our heartfelt sympathies and our love goes to her grieving mum.

    http://www.investinme.org/mestory1010.htm


     
    Last edited by a moderator: Sep 30, 2015
    Hutan, Pen2, Old Bones and 27 others like this.
  2. Effi

    Effi Senior Member

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    so heartbreaking :(:cry::heart:
     
  3. Snow Leopard

    Snow Leopard Hibernating

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    Very sad news!
     
    rosie26, Ecoclimber and alkt like this.
  4. Apple

    Apple Senior Member

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    :( So sad. :heart: RIP Lili. :tulip:
     
    Last edited: Sep 27, 2015
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  5. SOC

    SOC

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    Indescribably sad. :( What happened to Lili over the course of her illness is unforgiveable. :bouquet: RIP :bouquet:
     
    caledonia, Jennifer J, alkt and 3 others like this.
  6. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    RIP Lili, so devastating that your fight did not bear fruits :/ Life can be so relentless.
     
    rosie26, Ecoclimber and Jennifer J like this.
  7. AndyPandy

    AndyPandy Making the most of it

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    Heartbreaking.
     
    Ecoclimber likes this.
  8. Kina

    Kina

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    Very sad indeed. :cry::cry::cry:
     
    Ecoclimber likes this.
  9. Daffodil

    Daffodil Senior Member

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    dont even know what to say anymore. numb
     
    Ecoclimber likes this.
  10. perrier

    perrier Senior Member

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    There are thousands of Lili's
    Suffering all over the world in this way

    God bless this Mother
     
    Last edited by a moderator: Nov 4, 2015
  11. MaulikShah

    MaulikShah

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    So sad :( RIP Lili :bouquet:
     
    rosie26 likes this.
  12. Cinders66

    Cinders66 Senior Member

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    I would like to remember Lili at this time of year. Her story is heartbreaking. I'm glad she had such devoted care in her mother to soften the blows whilst she struggled and I'm grateful to her for establishing severe ME day in recognition of what the 25% who live in an almost unbelievable existence often hidden, are enduring.
    Peace to you Lili and strength to your family xx
     
  13. perrier

    perrier Senior Member

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    Rest in peace sweet Lili.

    I feel rage that things are not moving faster....
     
    johnnydme and rosie26 like this.

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