I like many others have found the HFME website by advocate Jodi Bassett extremely helpful and life saving over the years with so much useful information (before Phoenix Rising and MEAction were established) and I was re-reading a couple of her articles today such as this brilliant one: http://www.hfme.org/whatisme.htm And while doing a google search I came across this very upsetting news which was posted 11 hours ago http://www.westannouncements.com.au/obituaries/thewest-au/obituary.aspx?pid=180305608 Jodi BASSETT Obituary BASSETT (Jodi Lyn): Our darling, beautiful Jodi, left us on June 11, at home, with her family beside her. She was a talented artist, author and HFME activist. She was the most amazing, caring, intelligent, and funny person and we will miss her always. Her beautiful spirit is now flying free. May the winds of love blow softly And whisper for you to hear That we will always love you And forever keep you near. All our love Mum, Dad, Claire Dan and Leila, Mark Betty and Reec - See more at: http://www.westannouncements.com.au...tuary.aspx?pid=180305608#sthash.i0HRdMlF.dpuf I am so shocked and upset at reading of this and can't believe its true. She was an amazing ME advocate. Here is her website: http://www.hfme.org/ She published a number of books http://www.hfme.org/hfmebooks.htm May Jodi Bassett (ME advocate extraordinaire) Rest in Peace.