Discussion in 'ME/CFS Doctors' started by szenn, Jul 15, 2013.
I think it has to do with distance--how far you have to travel. I have follow-ups by phone.
i admire your strength/willpower to make that trip to Belgium, while so sick.
the money required to do it is beyond most people's means, especially the longer-term patients who are now
financially depleted. we could be screwed; it's difficult to remain positive.
It is probably a matter of belgian law. I suppose he must see a patient once in a while in order to prescribe medication and not get in trouble with his license.
You're quite right Marlene - I'd forgotten there is something in European law about doctors seeing patients face to face every 12 months - but it hadn't been 12 months for me which annoyed me somewhat.
i thought the 12 month rule was only if they are writing prescriptions. for you. what if you get your meds from a local doc? do you still have to see KDM every year?
Yes, you have to see him at least every year--much more often if you are in Europe. He would need to draw blood, have the option of examining you etc.
I think it is reassuring that he wants to see you often. He asked me to see him again and I wasn't charged anymore money
another question. I have been on clarithromycin and rifamipin and last night, I noticed that my gums and teeth are turning blueish black! just tiny spots so far....has anyone experienced this?? I looked it up and found that this can happen with minocycline but I couldn't find anything else. looks like it only happens in a small minority of people. I also couldn't find any info of whether this is reversible or not! aack
what does KdM say about this?
hi mary. i havent asked him yet. i noticed it late last night but i think he might change my regimen soon so maybe it will be a moot point....
since i began abx i have sure become ugly LOL. my face is all flaky with red patches from sebhorreic dermatitis and now this!
Assuming you haven't already, go buy (or get prescribed) yourself some Selsun 2.5% shampoo - it will make a huge difference! I litteraly just put some on myself. I need it every once in a while now but nothing like before, and when I do use it it works very quickly.
good tip - my hubby uses it - miracle stufff.
I've had to order it from abroad as there's been a problem in the UK with getting hold of it.
Do try it daff.
Thanks guys! Is it possible to talk to him long enough to ask all the questions you want or does he really rush you out of the office and isn't talkative?
thanks, all. should I put selson blue on my face? I am already using loprox on my scalp for severe sebbhorea since childhood. it is the only thing that worked. I know I should see a dermatologist but I am just too sick to go right now.
sebby....it all depends on how many questions you have. I think if you keep asking, he might keep answering, as long as they pertain to your condition. I didn't feel rushed
I was originally prescribed it for my face (above my lip, and eyebrows) after another product didn't work. It completely eliminated the problem from my eyebrows so I don't need it there now, and I still have to use it on the bit above my lip but its very effective. Just leave it on for a couple of minutes then rinse off. I don't get it anywhere else.
I have always been able to ask all my questions.
Daffodil have you seen a dermotogist?
Oops, pardon my fog. Boy I know the feeling of being too sick to see a doctor. Sucks, doesn't it? Can someone take you, though there have been times I wouldn't even be able to do that.
hi barb. yes i can go...i can do maybe 1 outing a week, so the weeks all get booked up quickly. i will try to go in a week or 2. i first have to make it to my regular doctor, who will then refer me to the dermatologist...so it will take a while.
Has anyone read Burrascano's Lyme treatment guidelines? Apparently all the top US LLMD's follow it?
You can also try a Google Site Search
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