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In Belgium to see KDM

Discussion in 'ME/CFS Doctors' started by szenn, Jul 15, 2013.

  1. maryb

    maryb Senior Member

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    I think people will continue to do what they think is right for them when posting about their experiences with ME docs, and also how they view what goes on within the BMA (for us in the UK) with regards to this illness, this is an important aspect of it for me.

    I certainly wouldn't ban anyone from saying anything though - its a forum for all.
    Anyway I think this thread has been well and truly de-railed........no more from me.
    SOC, Valentijn, merylg and 1 other person like this.
  2. szenn

    szenn

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    This thread is about Lyme disease and KDM
  3. szenn

    szenn

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    That's a shame. I started this thread so we could all learn about lyme disease and KDM's treatment of it. We need to learn off each other. and pm's are all very well but i would not known about lyme or kdm if i had not seen snow athlete's threads here.
    Katherine likes this.
  4. szenn

    szenn

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    Been on treatment now for nearly seven months. My symptoms in the last week seem to have got worse.
    Is this normal. I am seeing KDM on Tuesday
  5. snowathlete

    snowathlete

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    I don't know, good question. But, after about ten months I've stopped taking the abx. My hand was forced by my continuing weight loss from UC. I need to fix my gut before I go any further. And then I'm going to have to do so with more care for my gut, which might rule abx out.
    Valentijn, maryb and szenn like this.
  6. szenn

    szenn

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    I am sorry to hear that snow, did you never feel better? How are you feeling now? better since being off?

    What has e suggested to you?
    Last edited: Mar 15, 2014
  7. snowathlete

    snowathlete

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    I see him on the 20th so don't know what he'll say yet. I didn't consult him about stopping as it often takes a while to get a response as you know, so thought it would just make sense to wait till the 20th or just make the decision on my own, which is what I did this time.
    I expect he'll want me to restart them in a few weeks but not sure ill be willing to so that. He knows a lot about the gut so hopefully he'll be willing to help me focus there instead. That's definitely where I want to focus.
  8. szenn

    szenn

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    I saw that you are back on Clarithomycin. Did the doctor treat your gut?

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