NEJM article 21st January As patients strive to manage their own health and illnesses, many wonder how to get a copy of their health data to share with their physicians, load into apps, donate to researchers, link to their genomic data, or have on hand just in case. To seek diagnosis or better care (see tableSelected Reasons for Pursuing Patient-Controlled Data.), many patients are taking steps outside traditional doctor–patient relationships. Some join 23andMe to obtain genetic information. Others bring data to the Undiagnosed Diseases Network at the National Institutes of Health (NIH). Patients are coalescing with others with the same disease in what the Patient Centered Outcomes Research Institute calls patient-powered research networks. But such patients have found no easy way to get copies of their electronic health records (EHRs). More here. The UK's NHS has the aim that to which my GP expressed scepticism, perhaps partly because our governments have a history of delivering late (or not at all) on their promises. I am currently waiting for copies of scan reports from 2014, having now had to phone three times. (I didn't ask in 2014 but more recently, as I try to make sense of my conflicting diagnoses, the doctors having appeared to give up trying). Here, if one asks for extra tests, or copies of results, one is commonly made to feel that one is asking for the moon. I expect that eyebrows would hit the ceiling if I asked for copies of my actual scan images. I wonder why doctors find it so strange that patients want to know what is going on in their own bodies? Are they not interested in these things? Are they a different species?