Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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Improvements during menstruation?

Discussion in 'General ME/CFS Discussion' started by pibee, Dec 2, 2017.

  1. pattismith

    pattismith Senior Member

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    During menstruation, both progesterone, oestrogens and testosterone drop, so it's difficult to say which drop benefits to you.

    Do you have head pressure? you may have a look in this thread:
     
  2. pibee

    pibee Senior Member

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    Yes. Nonstop - 247- headpressure
    I never had a headache in my life before treating Lyme.
    What is spooky is that areas of my brain that hurt are the ones that dont work
    Example, when i have pain on top of my head bilateral... Approx in motor and premotor area - i have motor problems (apraxia), when i have in frontal lobe, i got problma with processing etc

    Before i had all these sympoms but never pain. Now just symptoms match pain locations.



    Link is not working btw


    EDIT:
    Ow, i assume your link was about intracranial hypertension.
    Yes i consider this very likely
    Especially because it got worse with doxycycline.

    But it is triggered during herxes. I got many other symptoms with herx, that went away eventually, but headache is very stubborn. Started w pressure but than transformed to headache + pressure.
    Neurologist didnt even bother to keep me in hospital , one of those who dont know what ME stands for.

    Seems i have this
    https://en.wikipedia.org/wiki/New_daily_persistent_headache
     
    Last edited: Dec 11, 2017
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  3. pattismith

    pattismith Senior Member

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    I believe I have intracranial hypertension, for me it was worsened by Doxy, by Macrolides and by Metronidazole. It has nothing to do with Heirx, it's a side effect of these antibiotics.
    You should receive a treatment for it.

    Lyme and EBV (mononucleosis) are known triggers for this condition:

    http://ihrfoundation.org/hypertension/info/C17/
     
  4. pibee

    pibee Senior Member

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    For me it has everything to do with herx. I had lyme and bartonella [symptoms] for over 20 years and never had a headache.
    When I started to treat it with antibiotics I had severe herx reaction which gave me about 100 new symptoms I never had even for a minute (like fibromyalgia, neuropathies.... electricity through spine).. And as mentioned head pressure.

    I know. I was researching IH for a while, however I dont have neurologist who gives a fuck :( she just gave me Lyrica without even considering IH. And IH is so likely...
     
    Last edited: Dec 11, 2017
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  5. pattismith

    pattismith Senior Member

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    I think you musn't give up with this possibility. You can also talk about it with your GP and try to get a prescription for Diamox, it's worth a trial and is not so risky. I took only small doses and it worked.

    Do you have muscular symptoms?
     
  6. pibee

    pibee Senior Member

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    @pattismith , Muscular like what?

    Not much, not really.
    Headache, cognitive problems and fatigue is "all" i have


    I am guessing IV saline is a big no no if you have IH?
    :-/
    I take extra salt, should I avoid?
     
    Last edited: Dec 12, 2017
  7. pattismith

    pattismith Senior Member

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    Sorry I'm not a doctor pibee, I couldn't say if it may help.
     

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