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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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here. Lord Brain... unbelievableME/CFS was included by the distinguished neurologist Lord Brain in his textbook Diseases of the Nervous System, Oxford University Press, sixth edition: pp355
But heapsreal, until the day when it gets called whatever, wouldn't it be preferable to call it just ME? Rather than CFS or ME/CFS and having the whole fatigue thing in there? and the "oh I have that to" comments?. I do think that ME does describe what is happening at the central point of the disease though, but it doesn't describe everything as you said.