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Impaired cardiovascular response to standing in Chronic Fatigue Syndrome

Discussion in 'Latest ME/CFS Research' started by Kati, May 26, 2010.

  1. Kati

    Kati Patient in training

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    Eur J Clin Invest. 2010 May 20. [Epub ahead of print]
    Hollingsworth KG, Jones DE, Taylor R, Blamire AM, Newton JL.
    Institute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK.

    Link to abstract

  2. Interesting research thanks for posting.

    It's such a blow the Medical Research Council (MRC) in the UK refuses to fund Professor Newton's applications for grants, instead they give millions to Wessely and the somatoform school of psychiatry.
  3. ramakentesh

    ramakentesh Senior Member

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    Marvin medows and Julian Stewart have not only reported abnormal autonomic control and they are now publishing research that is demonstrating the etiology.
  4. Dolphin

    Dolphin Senior Member

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  5. Dolphin

    Dolphin Senior Member

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    I'm afraid I'm sometimes get a bit lost when cardiac issues are discussed (stopped studying biology at age 16).

    Is any of what she says/found about the heart similar to what Dr. Lerner postulates (I know she doesn't talk about viruses specifically):

    http://www.forums.aboutmecfs.org/sh...the-Lerner-Antiviral-Treatment-Trial-Succeeds

    http://www.forums.aboutmecfs.org/co...the-Lerner-Antiviral-Treatment-Trial-Succeeds

    Link to full paper
    http://www.dovepress.com/subset-dir...us-patients-with-c-peer-reviewed-article-VAAT
  6. Dolphin

    Dolphin Senior Member

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    This paper is now available to read in full. I look forward to reading comments on it.
  7. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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    Matlock, Derbyshire, Uk
    If you read the "Sources of funding" listed on P7 of the full version of the paper, you will see that the MRC did actually contribute to funding this study - in addition to ME Research UK, Irish ME Trust, John Richardson Research Group and CFS ⁄ME Northern Clinical Network.

    Don't get me wrong, I agree that the MRC's scandalous underfunding of biomedical research into ME/CFS deserves to be criticised, but we have a responsibility to properly credit them with having sponsored such research when they have done so.

    I think that your post should therefore be corrected.

    TGOP
  8. Dolphin

    Dolphin Senior Member

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    I think Julia Newton had some sort of general grant (of 900,000?) from years back (for autonomic research and the like).

    My guess is DysautonomiaXMRV is referring to some specific grant application for ME/CFS research by Julia Newton in recent years that they know about.
    The MRC haven't funded specific grant applications for ME/CFS studies except various studies e.g. PACE, FINE, epidemiology, etc. led by those of the CBT School of Thought with regard to the illness.
  9. Thank you Dolphin, this is what I am saying as I didn't say this study I said applications are rejected. Even if you wanted to know and applied for a FOIA request the MRC protect their own and you'll never find out who is blocked for funding due to 'privacy reasons'. This is very very clever as the public cannot find out which applicants are rejected for ME/CFS research (on the basis this breaks applicant confidentiality). Crazy huh? A person took the MRC to court to try and find out, but (of course) lost. The actual wording now I've accessed my neural network is:

    Regarding the MRC's meddling with ME CFS patients, I suggest (if one is able) to please read the following of how ME CFS is converted in MRC research to 'no specific symptoms' and lets include psychiatrically ill people Oxford CFS - criteria.

    See here: http://www.meactionuk.org.uk/SIGNS_in_ME.pdf

    There is an irony that despite this great cardio work, JN is on the 'fringe' of ME/CFS and not the core of the NHS. The fatigue clinics in the UK (those that were not shut down by funding being removed around 2006-2007) still continue to offer CBT/GE/Pacing. If Julia had been given money for more research into cardiac muscle abnormalities we'd be really getting somewhere. How one person is meant to manage the whole of the UK, I don't know.

    The CFS/ME fatigue clinics concentrate on keeping an activity diary, and only if you're lucky do you get to see a doctor instead of an OT (Occupational Therapist). At least Dysautonomia is beginning to be recognised by a few specialists in the NHS, although they never declare they are ME or CFS people at all, because they aren't! They are either general physicians or specialists in associated conditions - in this case, syncope.

    Maybe one day the NHS will provided dedicated Dysautonomia clinics and actual ME and CFS doctors who understand and explore biological mechanisms into neuro immune disease rather that toying around with 'sleep hygeine', which to my horror is a clever way to force the ME CFS patient out of bed, in the belief they are being lazy - on advice of the CFS/ME fatigue clinics again. It, of course, ended in relapse and disaster. Never bothered reported them, they'll only kick off another game of hide and seek. (I was told to get out of bed on 2hrs sleep, every day, and never once stop until my sleep is normal).

    So yes, more Julia's please and more research into bio-medical causes of severe fatigue and hemodynamic problems that prevent ME CFS patients even being able to walk in a room, never mind walk from the car park to the hospital clinic. MRC is a total joke for 'CFS/ME' everyone knows, see who's on their panel and ohh look, Mr Wessely and the MRC Research Advisory Group on "CFS/ME" is intimately aquainted. And if it isn't him it's another CBT 'fatigue' drone. Have things moved on? Well in the last 7 years 91% of MRC research funding for ME CFS was psychobabble according to ME Research UK.

    Link

    Too little too late.

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