Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Impact of health conditions based on burden of DALYS (don't think ME/CFS included)

Discussion in 'Other Health News and Research' started by Dolphin, Sep 24, 2015.

  1. Dolphin

    Dolphin Senior Member

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    CO8VOFfWEAAiXIF.png

    Comes from WHO's new #GBD tool: http://vizhub.healthdata.org/gbd-compare/

    Anyone able to see whether ME/CFS on this? I know people like @Snow Leopard have argued we might do well if research resources were based on DALYs but not good if we're not registering.

     
    alkt likes this.
  2. A.B.

    A.B. Senior Member

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    The DALY is partially based on how bad the general population thinks the illness is.
     
  3. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Yes, DALYs are based on a fudge factor, not that they call it that, though not the general public I think. Someone decides how bad a disease is, and gives it a multiplier. CFS used to rate very low. There is some official, or group, somewhere, who regard CFS as a non-issue.
     
    leokitten, Valentijn and alkt like this.

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