1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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A Little Poisoning Along the Road to ME/CFS
Looking at my symptoms, many of which are far less these days and some are gone, it would be easy to figure that I'd just been dealing with some heavy-duty menopausal issues.
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Immunotherapy against EBV: Targeting EBV infected cells using immunotherapy

Discussion in 'Other Health News and Research' started by Ecoclimber, Feb 5, 2014.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Dr. Lerner in Michigan is also giving Cidofovir.

    Sushi
     
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  2. Christopher

    Christopher Senior Member

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    Confirmation from someone affiliated with CFI of receipt of the study.
     
  3. Cheesus

    Cheesus Senior Member

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    http://www.medicalnewstoday.com/articles/272326.php
     
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  4. Christopher

    Christopher Senior Member

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    Now for funding =)
     
  5. Cheesus

    Cheesus Senior Member

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    I would guess MS has better funding sources than ME, so it hopefully won't be such a marathon. Fingers crossed it could have positive repercussions in ME.
     
    Ren likes this.
  6. Firestormm

    Firestormm Guest

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    It does seem very early days. And to be reporting on this in such a way when the study only comprised one patient seems strange. Then again, if the exposure helps bring interest to the team who worked on it - and funding - then large studies with controls if viable in some way - could produce more significant results that night lead to a better understanding of MS and other conditions perhaps.
     
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  7. Esther12

    Esther12 Senior Member

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    Yeah - reporting of these sorts of this always seems a bit scary to me, but they're open about the fact that it's just one person.
     
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  8. Christopher

    Christopher Senior Member

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    "Don't have anywhere near as much fatigue. Nowhere near as much pain."

    Mr. Pender says in the radio interview that the patient's symptoms improved 2 weeks after the injection, and he has remained improved for 1 YEAR after the injection.

    I spoke with Mr. Pender, and the organization MS Queensland is attempting to get a bigger trial going based on his study. The YouTube video below interviews Professor Pender and the patient from the study. According to the video, they need to raise $400,000 for a trial.

    Story from MS Queensland




     
    Last edited: Feb 7, 2014
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