The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Immpower (AHCC)

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Jenny, Jun 6, 2010.

  1. Andrew

    Andrew Senior Member

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    FWIW, my arthritis started acting up and I was afraid the AHCC was pushing me into an auto-immune condition. So I've stopped a couple weeks ago. Arthritis is a little better in the shoulders, but worse in the ankle.

    Anyway, I don't know what to do next. All this guessing is no fun.

    Thoughts?
     
  2. Timaca

    Timaca Senior Member

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    Andrew~ I'm new to the immunomodulator supplements. However, after doing some reading, I am going to add in Beta glucan. That and transfer factor helped a friend of mine. Beta glucans do not seem to cause auto-immune issues. Here is some info I've gathered on them and transfer factors:


    Beta Glucans:

    Dietary modulation of immune function by Beta glucans: http://www.sciencedirect.com/science/article/pii/S0031938407004702

    Immune modulating effects of Beta glucan: http://journals.lww.com/co-clinical...Immune_modulating_effects_of___glucan.10.aspx

    Beta Glucan Research: http://www.betaglucan.org/

    Beta Glucan info, Dr. Vetvicka's lab: http://glucan.us/glucanfaq.html
    An evaluation of the immunological activities of commercially available B-1,3 glucans http://glucan.us/Glucan1-2007.pdf

    B-glucans History and the Present: Immunomodulatory Aspects and Mechanisms of Action: http://glucan.us/vetvickaglucan1.pdf

    Beta Glucan Products: Jarrow brand: http://www.amazon.com/gp/product/B0013OX824/ref=ox_sc_act_title_6?ie=UTF8&m=ATVPDKIKX0DER

    Transfer Point: http://www.amazon.com/gp/product/B002WDMM22/ref=ox_sc_act_title_1

    Transfer Factor:

    Memorial Sloan-Kettering Cancer Center Info on Transfer Factors: http://www.mskcc.org/cancer-care/herb/transfer-factor

    Comparative Study of transfer factor and acyclovir in the treatment of herpes zoster: http://www.ncbi.nlm.nih.gov/pubmed/9839657

    Transfer Factor: http://www.ncbi.nlm.nih.gov/pubmed/3286720

    PDR: http://www.pdr.net/drugpages/productlabeling.aspx?mpcode=30651060

    http://www.pdr.net/drugpages/concisemonographprint.aspx?concise=2907

    Transfer Factor Products: 4Life Product: http://www.amazon.com/gp/product/B00337YAA8/ref=ox_sc_act_title_1?ie=UTF8&m=A3FGYTO10I0HUZ

    Pro Health Product: https://www.prohealth.com/shop/product.cfm/product__code/PH172/tab/Reviews#title

    Here is some info on the immune supplement (using mushrooms) that I was thinking of adding in later. However, I would need to do some more research on it:


    Immune Assist:

    Effect of immunomodulating and antiviral agent of medicinal mushrooms (immune assist 24/7) of CD4+ T-lymphocyte counts of HIV infected patients: http://www.ncbi.nlm.nih.gov/pubmed?term=immune assist 24/7 ghana CD 4

    Products: Immune Assist 24/7 http://www.amazon.com/gp/product/B0052OMX86/ref=ox_sc_act_title_4?ie=UTF8&m=A32Q9JLNIJXSES

    Immune Assist Critical Care Formula: http://www.amazon.com/gp/product/B003PC49TS/ref=ox_sc_act_title_3?ie=UTF8&m=A32Q9JLNIJXSES

    Aloha Medicinals: http://www.alohamedicinals.com/immune-assist-critical-care.htm

    Hope we all find something that helps us.
    Best, Timaca
     
  3. baccarat

    baccarat Senior Member

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    Andrew,
    I don't understand what you are trying to achieve?


    I tried beta glucans, if you go for it pick something that works. There's a lot of rubbish out there. The best for me was Beta 1,3D.
    There's a study comparing effectiveness of different brands but I can't find it right now.
     
  4. baccarat

    baccarat Senior Member

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    found it, the comparative study on glucans, here it is
    http://hopeforcancer.com/research/JANA2008.pdf
    The brand I mentioned uses Glucan 300 that came top in the study. I tried other two brands could not notice any effect.
    This one made me feel fluey and tired, I guess that was the result of activating my immune response but after about three weeks or so I stopped, as I started another treatment and didn't want to mix things up. I don't think I used them long enough to produce tangible results.
     
  5. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    I use AHCC and Maitake D Fraction drops twice a day for the immune system.
     
  6. Adster

    Adster Senior Member

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    I've got some beta glucans on the way, I'll report back when I have tried it for a while. Given my symptom remission when I catch an upper respiratory virus, I think immune balance/autoimmunity plays a big part in my illness.
     
  7. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    nudging this thread up to see how people are going with AHCC
     
  8. Andrew

    Andrew Senior Member

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    I stopped for awhile, and seemed to get a little worse. I started again, and feel a little better.
     
    heapsreal likes this.
  9. Chris

    Chris Senior Member

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    Hi; I am still pulsing (i.e. I stop for a few days every now and then) AHCC at about 3 gr per day, and seem to be improving very slowly and with drop backs from time to time, but am also following most of Terry Wahls' diet, and using a UV lamp (Sperbi) to get my Vit D up higher, so as usual don't know what is doing what--it would be so nice to have a doc who understood this stuff! Till then...
    Best, Chris
     
  10. Andrew

    Andrew Senior Member

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    I'm more clear on what's happening now. My biggest improvement is reduced orthostatic intolerance. I am at the level now where I can walk back and forth between rooms several times in a row. I sometimes stand and look at my mail, instead of immediately getting into a reclined position. One problem though. My orthosttic intolerance used to be so unpleasant it kept me from overdoing things. Now I am having mini crashes because I walk around my place too much. I'm going to have to learn to balance this.
     
    heapsreal likes this.
  11. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Fantastic Andrew! I usually take AHCC mainly when I am coming down with a cold. Glad it is helping so much!
     
  12. sianrecovery

    sianrecovery Senior Member

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    Jenny, how did you find the plaquenil? I started it and a big inflamatory response, and am just about to try again - for protomyxzoa - did you herx on it?
     
  13. Jenny

    Jenny Senior Member

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    It's a long time ago now - almost 2 years! I seem to remember that for a week or so my pain improved a lot, but then it came back. I think I took it for about 2 months, but then gave up. I didn't get any worse on it though.

    Jenny
     
  14. sianrecovery

    sianrecovery Senior Member

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    good to know, thanks xxxx
     

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