Ambrosia_angel
Senior Member
- Messages
- 544
- Location
- England
I went to my GP today because I started going downhill again. I suddenly became ill in the new year and since then I felt better for two days at maybe 80% but now I'm worse than I was a few weeks ago.
I mentioned to him that I had ME (quite severe as I was housebound) and I was thinking my current decline in health could be something to do with that and he said no and that everything I am presenting with is pointing to rheumatism. My GP was a different Dr back then.
I had very thorough checks when I was first ill because I was diagnosed as pediatrics. Did I have ME then and now I have another immune disorder or did I just have this rheumatic illness all along?
Has anyone ever heard of these cases? If I was misdiagnosed then I always though it would've been down to a rare type of mitochondrial disease because it can be so hard to test for.
I don't know what condition I have yet as the NHS is just ridiculously slow but No need go into that now. I'm guessing its one of the connective tissue diseases. I'm just very confused as my lethargy is very similar, if not worse than when I first had ME but I'm just managing it a little better this time. My symptoms are all very similar except the visible swelling now and a few other.
Thank you for reading.
I mentioned to him that I had ME (quite severe as I was housebound) and I was thinking my current decline in health could be something to do with that and he said no and that everything I am presenting with is pointing to rheumatism. My GP was a different Dr back then.
I had very thorough checks when I was first ill because I was diagnosed as pediatrics. Did I have ME then and now I have another immune disorder or did I just have this rheumatic illness all along?
Has anyone ever heard of these cases? If I was misdiagnosed then I always though it would've been down to a rare type of mitochondrial disease because it can be so hard to test for.
I don't know what condition I have yet as the NHS is just ridiculously slow but No need go into that now. I'm guessing its one of the connective tissue diseases. I'm just very confused as my lethargy is very similar, if not worse than when I first had ME but I'm just managing it a little better this time. My symptoms are all very similar except the visible swelling now and a few other.
Thank you for reading.