1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
Discuss the article on the Forums.

I'm crashing and I can't discipline myself

Discussion in 'Lifestyle Management' started by andreamarie, Dec 13, 2009.

  1. andreamarie

    andreamarie Senior Member

    Messages:
    195
    Likes:
    2
    I don't know why I'm so exhausted today. I was a couch potato yesterday and slept last night. Insomnia is one of my biggest problems. I know what I should do but I can't shut the computer and just watch a movie. I have lots of stuff on my DVR. I keep coming back to this site thinking I'll find an answer to all my problems. This is not unusual for me; I tend to attack a problem head on. Patience is not one of my virtues. So I'm going to close computer now and try not to come back. I'm starving and eating doesn't fill me up but I'm too tired to do more cooking. I never can sleep when I'm like this, so I have five hours till bedtime. Does this happen to anyone else or am I just incorrigible?
     
  2. Dainty

    Dainty Senior Member

    Messages:
    1,357
    Likes:
    533
    Washington State
    It happens to me too. I call it "the discipline of rest" because resting is really the absolute last thing I want to do. On my smarter days I set a timer and force myself to lay down with my eyes closed for at least that long, then allow myself to get up and do something, and then the timer again. Other times I just keep crashing until sleep at last overtakes me.
     
  3. Esther12

    Esther12 Senior Member

    Messages:
    5,370
    Likes:
    5,848
    I've been stupid with all this XMRV stuff.

    Forums can be really bad for sucking up your attention and energy.

    Doing what you know is best is difficult for almost everyone. Today was going to be my day away from here, to wheen myself off. It's not worked out...

    Shut the PC down and step away. If there's an answer on here, it will wait.
     
  4. Jody

    Jody Senior Member

    Messages:
    4,078
    Likes:
    552
    Canada
    Yup.

    What they said.

    It's the only way. Good luck! :)
     
  5. flybro

    flybro Senior Member

    Messages:
    581
    Likes:
    5
    pluto
    Yep

    I think the key for me was accepting that I am at my best during the night. I have no idea why.

    When I used to try and stick to a daytime routine, I would just be tired all the time, and toss and turn and night.

    Now I tend to sleep through the morning until about mid afternoon, I always try to stay in bed for 8 hrs.

    Since taking tramadol I'm not up and down like a yoyo going for a pee, so that helps. :)

    More recently I've discovered zopiclone, and if I get into a rolling 'wired and tired' thing, I'll take one and be out for the count 10/12 hours, it does make me sluggish tho.
     
  6. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    55
    Ms Andreamarie, I certainly hope you are not here! Good girl!

    Flybro,

    My circadian rhythm was totally upside down for years. This is a common finding in ME/CFS.

    When I was in remission, I was self employed and worked overnight whenever I could arrange it as it was the best time for thinking, bar none! I sometimes had assistants who worked for/with me. It could not have been much fun for them :eek:

    Now, that I am disabled, I follow a more normal schedule but I have no idea why that it. Maybe it's because thinking is no longer so vital and there are no productive times. I sleep from about 1 am to 9 am. I have never kept such normal hours... strange.
     
  7. andreamarie

    andreamarie Senior Member

    Messages:
    195
    Likes:
    2
    Thanks guys. Looking back at last week, it really was a brutal week. A hospital procedure, a doc appt and then one night my smoke alarm went on from one a.m. to three a.m.

    I have a doc appt tomorrow so even though I feel good today am doing nada.

    Sleep is my biggest hurdle. Ambien and then Ambien CR worked for years and last year stopped. I now use Dalmane, or Soma or Seraquol. I can't use Seraquol often because it dries my throat and mouth and makes my esophagitis worse, and that's at the lowest dosage. I take gabapentin at night which used to knock me out but doesn't anymore. Last night I was sure I'd wipe out and went to bed at midnight with a Soma, woke up at four a.m. and took a Dalmane. I slept until 9:30 a.m.

    I'm always so surprised when I read people on the board saying how they can sleep during day. I simply can't. I was a slow onset and my sleep problems were among first symptoms. I had TWO sleep docs but one no longer can see patients. Even when I had procedure last week conscious sedation didn't put me under.
     
  8. flybro

    flybro Senior Member

    Messages:
    581
    Likes:
    5
    pluto
    I'm envious Koan,

    I spent years trying to adopt such a healthy routine, ya big show off.

    My hours also flip, sometimes I'll have a period of normalcy re night and day.

    I live by, if I can I do, if I cant I don't, and to hell with the time.
     
  9. bakercape

    bakercape Senior Member

    Messages:
    210
    Likes:
    1
    Cape Cod. Mass
    Insomnia

    used to be high up on my symptom severity list. I found quite a bit of relief from it from taking Lexapro. I'm not a doctor and I know everyone with CFS reacts differently to medication but I thought I would share what has helped me with my sleep.
     
  10. Marylib

    Marylib Senior Member

    Messages:
    428
    Likes:
    11
    New Zealand
    For Andreamarie

    I have to switch sleep meds all the time. They all quit working eventually. From yucky TCA's to trazodone, to antihistamines to zopiclone to clonazepam to eating a certain herbal remedy -- sometimes combining in tiny doses. I deeply sympathize...just gotta keep trying I guess.
     

See more popular forum discussions.

Share This Page