1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
Discuss the article on the Forums.

Illness progression

Discussion in 'General Symptoms' started by leaves, Feb 21, 2011.

?

How does your ME look?

  1. Sudden onset: stable

    2 vote(s)
    5.4%
  2. Sudden onset: getting worse over time

    11 vote(s)
    29.7%
  3. Sudden onset: fluctuating

    12 vote(s)
    32.4%
  4. sudden onset: in remission now

    0 vote(s)
    0.0%
  5. If ill >1 yr: Gradual onset: stable for long time

    0 vote(s)
    0.0%
  6. If Ill >1 yr: Gradual onset: getting worse

    7 vote(s)
    18.9%
  7. Gradual onset: fluctuating

    2 vote(s)
    5.4%
  8. Gradual onset: in remission

    0 vote(s)
    0.0%
  9. Different

    3 vote(s)
    8.1%
  1. leaves

    leaves Senior Member

    Messages:
    1,193
    Likes:
    15
    Please tell me how your disease progresses.
  2. anne_likes_red

    anne_likes_red Senior Member

    Messages:
    835
    Likes:
    250
    I chose the second option "Sudden onset: getting worse over time"
    I had an inititating event as a child 26 years ago - a severe protozoal infection and half the hospital pharmacy thrown at it. Diagnosis of ME 6 years later after struggling along varying between a 5 - 7 on Bells scale.
    I had some treatment (HBOT and other complimentary treatments) 14 years ago and stayed at a steady 7 - 8 for a couple of years then crashed badly with Mono. Have struggled between a 2 and 5 on Bells scale ever since. I have all the classic symptoms, and I believe this illness is progressive.
  3. sleepy237

    sleepy237 Senior Member

    Messages:
    246
    Likes:
    12
    Hell
    Hii Leaves good poll my answer Sudden onset: fluctuating. Although im mostly lying down many of my symptoms have appeared to disappear and other new ones have appeared. I have never had what I could call a real remission over the past three years a couple of days of improved functioning. Really find it hard to answer whether I aM getting worse or not, still bed bound most of the time so definitely cant say im improving. On myhills scale i judged myself as an 18 and found it hard to rate between 10 and 30. take care ~Sleepy
  4. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    840
    UK
    Difficult one this but chose gradual onset (2 months from initial sore throat to decline). And fluctuating due to changing symptoms (some go and new ones appear -perhaps reactive).
  5. leaves

    leaves Senior Member

    Messages:
    1,193
    Likes:
    15
    OooOoh I didn't include the option of improvement..:headache:
    Can't change it now I don't think..
  6. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    331
    Southern USA
    Gradual onset 18 years ago. Finally got treatment, improvement. My problem now is POTS. That began two years ago. Pots is now improving also. Very slowly, but doing much better.
  7. alex3619

    alex3619 Senior Member

    Messages:
    7,236
    Likes:
    11,380
    Logan, Queensland, Australia
    Hi, this is actually a tricky poll. I answered over 1 yr, gradual onset, getting worse. In some ways I have been stable for years, others I have fluctuations, and in other ways I am slowly declining and its not looking good. This is a very difficult illness to define what is happening. Bye, Alex
  8. pine108kell

    pine108kell Senior Member

    Messages:
    140
    Likes:
    26
    Why is "improving" not an option ? I know it is an endlesss struggle and no one gets cured, but there are many people that have improved over time, or at least report that they do. Although I would put myself in "fluctuating" category, I am mostly better than I was five years ago.

See more popular forum discussions.

Share This Page