Illness progression

[leaves]

Please tell me how your disease progresses.

 

[anne_likes_red]

I chose the second option "Sudden onset: getting worse over time"
I had an inititating event as a child 26 years ago - a severe protozoal infection and half the hospital pharmacy thrown at it. Diagnosis of ME 6 years later after struggling along varying between a 5 - 7 on Bells scale.
I had some treatment (HBOT and other complimentary treatments) 14 years ago and stayed at a steady 7 - 8 for a couple of years then crashed badly with Mono. Have struggled between a 2 and 5 on Bells scale ever since. I have all the classic symptoms, and I believe this illness is progressive.

 

[sleepy237]

Hii Leaves good poll my answer Sudden onset: fluctuating. Although im mostly lying down many of my symptoms have appeared to disappear and other new ones have appeared. I have never had what I could call a real remission over the past three years a couple of days of improved functioning. Really find it hard to answer whether I aM getting worse or not, still bed bound most of the time so definitely cant say im improving. On myhills scale i judged myself as an 18 and found it hard to rate between 10 and 30. take care ~Sleepy

 

[Enid]

Difficult one this but chose gradual onset (2 months from initial sore throat to decline). And fluctuating due to changing symptoms (some go and new ones appear -perhaps reactive).

 

[leaves]

OooOoh I didn't include the option of improvement..:headache:
Can't change it now I don't think..

 

[Sallysblooms]

Gradual onset 18 years ago. Finally got treatment, improvement. My problem now is POTS. That began two years ago. Pots is now improving also. Very slowly, but doing much better.

 

[alex3619]

Hi, this is actually a tricky poll. I answered over 1 yr, gradual onset, getting worse. In some ways I have been stable for years, others I have fluctuations, and in other ways I am slowly declining and its not looking good. This is a very difficult illness to define what is happening. Bye, Alex

 

[pine108kell]

Why is "improving" not an option ? I know it is an endlesss struggle and no one gets cured, but there are many people that have improved over time, or at least report that they do. Although I would put myself in "fluctuating" category, I am mostly better than I was five years ago.