Discussion in 'General Symptoms' started by leaves, Feb 21, 2011.
Please tell me how your disease progresses.
I chose the second option "Sudden onset: getting worse over time"
I had an inititating event as a child 26 years ago - a severe protozoal infection and half the hospital pharmacy thrown at it. Diagnosis of ME 6 years later after struggling along varying between a 5 - 7 on Bells scale.
I had some treatment (HBOT and other complimentary treatments) 14 years ago and stayed at a steady 7 - 8 for a couple of years then crashed badly with Mono. Have struggled between a 2 and 5 on Bells scale ever since. I have all the classic symptoms, and I believe this illness is progressive.
Hii Leaves good poll my answer Sudden onset: fluctuating. Although im mostly lying down many of my symptoms have appeared to disappear and other new ones have appeared. I have never had what I could call a real remission over the past three years a couple of days of improved functioning. Really find it hard to answer whether I aM getting worse or not, still bed bound most of the time so definitely cant say im improving. On myhills scale i judged myself as an 18 and found it hard to rate between 10 and 30. take care ~Sleepy
Difficult one this but chose gradual onset (2 months from initial sore throat to decline). And fluctuating due to changing symptoms (some go and new ones appear -perhaps reactive).
OooOoh I didn't include the option of improvement..:headache:
Can't change it now I don't think..
Gradual onset 18 years ago. Finally got treatment, improvement. My problem now is POTS. That began two years ago. Pots is now improving also. Very slowly, but doing much better.
Hi, this is actually a tricky poll. I answered over 1 yr, gradual onset, getting worse. In some ways I have been stable for years, others I have fluctuations, and in other ways I am slowly declining and its not looking good. This is a very difficult illness to define what is happening. Bye, Alex
Why is "improving" not an option ? I know it is an endlesss struggle and no one gets cured, but there are many people that have improved over time, or at least report that they do. Although I would put myself in "fluctuating" category, I am mostly better than I was five years ago.
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