Illness progression in chronic fatigue syndrome: a shifting immune baseline

[free at last]

My IL8 was also high and remains so when tested as a patient of KDM - however I thought the abstract suggested it was high in patients ill less than 2 years, or have I missed something? I have been ill, to varying degrees or 20 years, but the last 7 has been severely. I was tested for IL8 6 years in to my severe relapse.


This has been my exact experience also. Symptoms from age 35 told too young for menopause - this year at 46 told the same symptoms, which have still not been adequately investigated are just menopause. You honestly just cant win with the NHS can you?

Also told last week I have 'seen enough' specialists over the past 7 years, so it looks like I am now not allowed to develop any new issues . I have been recently diagnosed, by an NHS consultant, seen priavelty with MCAS, but am not allowed to now be seen by an immunologist on the NHS as I have seen 'enough consultants'.

Hi Justy

Its this kind, of washing of hands, of a illness they don't understand. And do not have the expertise to make any meaningful headway with. should require a apology.

When the science catches up. And finally leaves those in the NHS, that leave patients to get on with it, with egg on there faces.

This is why a large percentage of the NHS will have to be taken kicking and screaming. To the realization that the science is proving the illness to be biological in nature.

And trust me, there will be many that, steadfastly refuse to catch up, and get with the program. Once the science catches up. Which is happening right now.

Its also dangerous to patients well being. Like the boy who cried wolf. Anyone in your predicament Justy That developed some kind of complication, new or otherwise, is on dangerous ground, dis believed, with a air, off, we don't need to check this person, she claims to have ME mentality. Its outright dangerous bias. It worries me.

 

[valentinelynx]

Yes ... chronic background pain is gone, and I do much better cognitively.

Oh, I wish something would get rid of my chronic background pain! Good for you!

 

[Justin30]

I had high IL 10 and high TNF. Illness duration less than one year.

Definately a subtype of something lol....

I feel like crap most days now...treatment to begin soon

 

[cigana]

I summarised some IL-8 findings from RED labs here. I've gone back and looked for any IL-6 results, they ranged from normal to high, so the results aren't perfectly consistent.
My own IL-8 is consistently high and my IL-6 is consistently within the normal range.