I have had ME since 2013 and it has stopped me from working in june 2015. So about 4 years now. For those who have had ME longer, is there anything you would do differently if you could ? If you knew what you know now, would you treat yourself differently ? I am not working, and basically resting and not doing much. I am at a functioning level, but feel my condition is worsening. I have to go back to work soon, and this is putting a lot of stress on me. I don't have a partner or husband to rely on, just myself. Money has to come in at some point. I had a few new symptoms lately : a headache that lasted 3 days (started after I put a new cream, very lightly scented, on my face, which I quickly discontinued), tremors in my right thumb, the one used to play cards on my tablet, blurred vision happening frequently and lasting for many hours and the one thing that frightens me the most, a shaky feeling inside and lactic acid sensation both growing stronger. My muscles feel weak very rapidly because of the lactic acid. As soon as I use any muscle for more than 2-3 seconds, I feel a weakness/tiredness set in and I have to stop the movement. For now I am taking something that helps me with crashes, which I am happy about. I want to start taking LDN also, I will ask for a prescription when I see my doxtor, in a few weeks, I obey the pacing rules, I exercise very carefully (and very little), I measure my heart rate variability and I try to eat well (gluten free, dairy free, no refined sugars). Although I have been cheating during the holidays and have to go back to a more strict regimen. I also work on anxiety management and sleep improvement. I guess I am loooking for reassurance. I feel the illness is progressing and hat I am losing control, and it is scaring me. Any tips welcome !