Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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IiME UK Rituximab trials website (2017)

Discussion in 'Rituximab: News and Research' started by slysaint, Mar 1, 2017.

  1. slysaint

    slysaint Senior Member

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    I posted the website address on a previous thread:
    http://www.ukrituximabtrial.org/

    The Invest in ME UK Rituximab Clinical Trial and B-cell Studies


    Welcome to the UK rituximab trial Home page

    Invest in ME is a UK charity campaigning for a strategy of biomedical research into Myalgic Encephalomyelitis (ME) and promoting better education about ME.

    This website describes the UK rituximab trial project and related B-cell study research which Invest in ME has initiated and has been organising since the international biomedical researchers meeting and conference which the charity organised on 30/31 May 2013 and which was announced on Invest in ME website on 6th June.
    We are doing this to further advance biomedical research into ME and provide hope for some to regain their lives, and for others to benefit from improved knowledge about this disease.


    “Looking at the research directions currently being pursued in ME/CFS, I am in no doubt that the usage of rituximab is one of the most promising.”

    - Emeritus Professor Jonathan Edwards


    “Invest in ME are at the forefront of international biomedical research and have by sheer determination and effort managed to put things in place for a trial of rituximab to begin on ME patients in the UK.”

    - Professor Malcolm Hooper & Margaret William
     
  2. Kenny Banya

    Kenny Banya Senior Member

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    Australia
    I don't understand why Roche are so unwilling to fund the trials.
    It's in their profit making interests to do so
     
    dangermouse and MEMum like this.
  3. Esther12

    Esther12 Senior Member

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    Isn't the patent on rituximab about to run out?
     
  4. Kenny Banya

    Kenny Banya Senior Member

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    Australia
    Rituximab is the second highest grossing drug on the planet.
    Their profits don't evaporate once the patent expires
     
  5. Battery Muncher

    Battery Muncher Senior Member

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    I notice that £512,000 out of the £520,000 target has been raised for the UK Rituximab trial.

    Is it worth running a campaign to raise the other £8,000?
     
    MEMum and dangermouse like this.
  6. Jo Best

    Jo Best Senior Member

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    It would be great if you or anyone could give this a boost.
    Let's Do It for ME is the patient community campaign but is run by people with severe ME so all support and fresh ideas or impetus, spreading the word etc. very much appreciated.
    This was the quick update on reaching £700k (for gut and rituximab/B-cell funds): http://ldifme.org/2017/05/19/crowdfunding-update/
     
  7. Battery Muncher

    Battery Muncher Senior Member

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    Will think about this. And maybe make a thread or something at the weekend :thumbsup:
     
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