Invest in ME statement on SMILE Trial.
This is a real charity as always standing up for people with neurological ME.
http://www.investinme.org/IIMER-Statement-1709-01.shtml
Please read this article and look at the pictures.
It also mentions about Lynn Gilderdale and it would have been her 40th Birthday now. Since her death we have achieved very little in terms of biomedical treatment and instead had the spectacle of the SMILE trial.
I have been very angry at the SMILE trial and it appears that IIME are also angry. That is no surprise. It is good to see that they are angry at the continued abuse of pwME.
Who are these organisations/charities in the big tent that they are referring to? They have blood on their hands as collaborators.
We should ALL be angry. Otherwise nothing will change!!!
This is a real charity as always standing up for people with neurological ME.
http://www.investinme.org/IIMER-Statement-1709-01.shtml
Please read this article and look at the pictures.
It also mentions about Lynn Gilderdale and it would have been her 40th Birthday now. Since her death we have achieved very little in terms of biomedical treatment and instead had the spectacle of the SMILE trial.
I have been very angry at the SMILE trial and it appears that IIME are also angry. That is no surprise. It is good to see that they are angry at the continued abuse of pwME.
Who are these organisations/charities in the big tent that they are referring to? They have blood on their hands as collaborators.
We should ALL be angry. Otherwise nothing will change!!!
It is shameful that any self-respecting researcher would participate in this.
It is disgraceful that any media outlet with any integrity would just take the press release of a media centre which is known for promoting a false view of ME and then avoid doing even the most basic of journalistic tasks – such as research of the information.
It is especially disgusting to witness the hypocrisy of some organisations who now complain about this training programme - yet all the while seem to be happy to sit in the same “big tent” along with the SMILE Trial PI, in a so-called collaborative organisation which continues to support this sea of research dross.
What a sickening spectacle! Any ME charity or researcher promoting this training programme, or working with the people that carry out this research, is doing a great disservice to ME patients.
while some are sitting happily in the establishment big tent alongside the SMILE Trial PI and do not see anything incongruous in that situation;