Surprisingly good outcomes for people who get ME/CFS after Mononucleosis (Glandular Fever)
Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath shares results from a long-term follow-up study from Haukeland University Hospital in Norway...
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IiME: NICE – A Poverty of Reason (Update)

Discussion in 'General ME/CFS News' started by Ember, Feb 23, 2014.

  1. Ember

    Ember Senior Member

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  2. biophile

    biophile Places I'd rather be.

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    Evidenced-based guidelines today, malpractice tomorrow

    Karen S. Sibert, MD | Physician | February 21, 201

    http://www.kevinmd.com/blog/2014/02/evidencedbased-guidelines-today-malpractice-tomorrow.html

    "There are fads in medicine just as there are in fashion — today’s 'evidence-based guidelines' may be tomorrow’s malpractice. [...] The authors of the SCIP core measure cite scientific evidence to support their recommendations. Unfortunately, much of the science has been discredited."

    Sound familiar? Reminds me of CBT/GET for ME/CFS, which is little more than a hyped fad and based on questionable superficial evidence which falls apart when its looked at too closely.
     
    Last edited: Feb 23, 2014
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  3. alex3619

    alex3619 Senior Member

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    Not just familiar @biophile, but endemic and expected.
     
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  4. Snow Leopard

    Snow Leopard Senior Member

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    This begs the question though.
    So they don't expect the evidence base to change, the question is why? Because there is so little research into treatments and clinical outcomes. Doesn't this mean that we should in fact be expanding research funding in these areas since the outcomes right now are so poor?

    It seems there is a big gap in the reasoning between different government departments.

    They are literally planning to fail.
     
    Last edited: Feb 24, 2014
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  5. alex3619

    alex3619 Senior Member

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    Most of medicine is not "evidence based" as understood by the majority of those who practice EBM. EBM itself has fundamental flaws in its current practice, that those who promote Science Based Medicine are well aware of. If its not science-based, what kind of evidence is it? EBM at its worst is a managerial practice, run by the numbers with no proper investigation into the research it uses. It presumes, unjustly, that the research it uses is sound, and yet its precisely because we know it is not sound that EBM is promoted. Its medicine by numbers. There needs to be lots more research into this, but there are probably hundreds of thousands of things that need to be studied, with high powered studies ... where is the money coming from? The resources, including unbiased researchers? EBM may be the way of the future but that future is next century at least. This century it threatens to become an evidence based monstrosity.
     
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  6. user9876

    user9876 Senior Member

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    I wonder if it is an argument to go to the MRC and NHS research funding and say more funding is needed. And different funding that will lead to treatment.
     
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  7. daisybell

    daisybell Senior Member

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    How ironic that the kevinmd.com website should have a 'learning opportunity' written the very next day stating that CBT and GET are the only effective treatments for CFS.....
     
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  8. Valentijn

    Valentijn Activity Level: 3

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    Ah, but all the suggestions from authorities about empowering patients, reading the actual frigging research, and the failures of EBM never apply to ME/CFS.

    I think ME/CFS is just the current whipping boy of the medical world.
     
    Last edited: Feb 24, 2014
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  9. biophile

    biophile Places I'd rather be.

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    odns_cbt-get_me-cfs.jpg
     
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