The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Igenex Full Results came in - No Help from them (borderline scam?)

Discussion in 'Lyme Disease and Co-Infections' started by Matthewa100, Feb 2, 2017.

  1. Matthewa100

    Matthewa100

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    Dear All,

    I know these threads are populated with IGeneX posts but having just done my results with them I think this is a bit of a scam tbh. They said I 'might' have Lyme lol - You couldn't make it up really.

    When I called them actually give direct answers to the results they wouldn't give me them. They kept fobbing me off to third party Lyme sites or send me irrelevant PDF's. The bottom line is they charge $1500 for a couple of blood tests but then cannot give you a definitive answer. I have had blood tests before and they were always clear and transparent.

    I live in Asia so no access to lyme doctors here. Perhaps someone knowledgeable hear can do the job the jokers at IGeneX could not.

    Western BlotIgM

    IGX: Indeterminate
    CDC :Negative

    Other bands negative
    Band 31: +
    Band 41: ++

    Western BlotIgG

    IGX: Positive
    CDC : Negative


    Other bands negative
    Band 41: ++
    Band 83-93: +

    Borreliosis - All Negative

    Bartonelliosis - All Negative

    Thanks in advance,

    Matthew
     
  2. Valentijn

    Valentijn Senior Member

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    Testing services never interpret their results, beyond giving normal ranges. A doctor is needed for that. Or you can look it up yourself online.
     
  3. adreno

    adreno PR activist

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    No test can give you a definite Lyme diagnosis. It is a matter of considerable debate when a western blot is to be considered positive. It is all amount probabilities.
     
  4. Matthewa100

    Matthewa100

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    So basically it can be either way. What a pointless waste of money on my part.
     
  5. Valentijn

    Valentijn Senior Member

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    It's used in combination with clinical history. A doctor would assess your symptoms and other lab results to make a diagnosis.
     
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  6. Matthewa100

    Matthewa100

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    this is sounding like a total scam. So a 'lyme specialist' doctor will make an analysis of meaningless test results go through your symptoms and give you a 'diagnosis....'
     
  7. Valentijn

    Valentijn Senior Member

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    Not really. Some symptoms are fairly specific to Lyme. And the lab results which show an ongoing infection (if not the cause) are fairly mainstream.
     
    duncan likes this.
  8. Matthewa100

    Matthewa100

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    You sound like an ideal recruit for IgenX! Answers without any solution!
     
  9. duncan

    duncan Senior Member

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    OR any infectious disease doctor, or any GP for that matter.

    Lyme testing issues are not peculiar to Igenex. Pick any lab that tests for Bb and interpretive issues can arise.

    Such is the nature of Lyme diagnostics.
     
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  10. Matthewa100

    Matthewa100

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  11. duncan

    duncan Senior Member

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    Bb antibodies are not psychosomatic.

    No one said it is impossible to test properly.

    You may wish to do some basic research. Or not.
     
  12. Valentijn

    Valentijn Senior Member

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    No, not at all. Even if some cases of Lyme (or anything else) are misdiagnosed, it doesn't suddenly mean that every potential physical cause for symptoms has been ruled out. It simply means that the cause hasn't been found yet.

    Psychosomatic disorders remain completely hypothetical. And thus far a great many diseases first thought to be psychosomatic have been proven to be biological. So odds are that any particular symptom, especially a chronic one, is not psychosomatic.
     
  13. Sushi

    Sushi Senior Member Albuquerque

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    The "interpretation" is computer generated. It is expected that you will present the testing results to a doctor who will interpret them in light of your history and symptoms. As @Valentijn said, labs don't give diagnoses--just data.
     
  14. sarah darwins

    sarah darwins I told you I was ill

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    The IGeneX website is pretty explicit:

    http://www.igenex.com/Website/testing/interpretations/
     
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  15. Dufresne

    Dufresne almost there...

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    @Matthewa100, well I hope you don't just give up on your search, or on Lyme as a possibility. I know Dr Horowitz calls it Lyme Bingo. Basically if you have a few of the common symptoms and any of your Igenex bands hit, he goes on to treat.

    Welcome to the forum. I hope you stick around.
     
  16. Matthewa100

    Matthewa100

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    Valentijn - Actually its quite the opposite. You realize conditions like 'lyme' and 'fibro' did not 'exist' until 30 years ago.

    It just seems to be a bit of a racket - charge and obscene amount for a couple of blotter tests - then can only be evaluated by a 'specialist' who charges an onscene amount to review the 'results' before passing a non specific verdict.

    Sounds like a good business!
     
  17. IreneF

    IreneF Senior Member

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    Igenex has a reputation for false positives.
     
    cyclist likes this.
  18. Matthewa100

    Matthewa100

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    IreneF - I am not surprised by this statement.
     
  19. Valentijn

    Valentijn Senior Member

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    The Lyme bacteria was discovered 110 years ago, but it certainly existed long before that - probably for thousands of years. The difference would be that now accurately diagnosed patients know that an infection is causing their symptoms. The label for Fibromyalgia may be relatively new, but descriptions of the symptoms go back a couple hundred years.

    Do you think MS doesn't exist because it wasn't detectable in brain scans until 40 years ago? Or do you think it was nonexistent prior to that point, but then suddenly became real when it could be verified? ME is already similarly verifiable, with the right tests, and it would be just as much of a real disease even if it weren't.
     
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  20. sarah darwins

    sarah darwins I told you I was ill

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    I'm a bit puzzled about why you would apparently spend $1,500 on a test when you seem so convinced that the test is useless and Lyme disease is some sort of invention.
     
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