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ME/CFS and Beating the Clock
For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room ...
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If you know someone with Dysautonomia....

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Allyson, Mar 2, 2014.

  1. Allyson

    Allyson *****

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    Australia, Melbourne
  2. xchocoholic

    xchocoholic Senior Member

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    Intetesting blog. Thanks. She sounds exceptionally functional for a potsy.

    I saw myself throughout her writings. I never thought about how hard my heart is working when I'm upright. I just attributed my weakness
    or fatigue to hypoperfusion. Fwiw tho, unless I have to, I don't stand in one place and provoke my hr to get to my pots rate.
    If I do sitting or laying down is typically a requirement.

    As far as I could tell, she hadn't uppdated this since 2010 and doesn't know about the possible benefits of changing her diet.

    Most of the people I met on dinet knew about diet tho last year. :)

    Tc .. x
    Allyson likes this.
  3. adreno

    adreno 3% neanderthal

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    Tundras of Europa
    What kind of dysautonomiac goes to drink in bars?
    xchocoholic likes this.
  4. xchocoholic

    xchocoholic Senior Member

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    An exceptionally functional one. :)

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