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If you had a few spare bucks, what would you buy to ease your condition?

SilverbladeTE

Senior Member
Messages
3,043
Location
Somewhere near Glasgow, Scotland
A date with Bailey Jay! :p

Basil-Brush.jpg


Well, it would be "life changing" as I'd probably keel over and die cause like, just tottering around the house is as much as I can do now.....but I'd die with a smile!: D

(not in anyway a dig a TS folk, she's just very fun and cute and I like being outrageous :) She reminds me of Pauley Perrette who's a heck of a gal.)
or it could be Karen Gillan! but hey...even thought of that leaves one in a swoon, lol


Anyway, for serious....getting a bathtub fitted that can also be used as shower, with side opening door in the tub or such.
Alas had to get bathtub replaced with walk in shower years ago for Mum, but it was by far best and only way for me to get any kind of relaxation at all.
 

TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
A date with Bailey Jay! :p

Basil-Brush.jpg


Well, it would be "life changing" as I'd probably keel over and die cause like, just tottering around the house is as much as I can do now.....but I'd die with a smile!: D

(not in anyway a dig a TS folk, she's just very fun and cute and I like being outrageous :) She reminds me of Pauley Perrette who's a heck of a gal.)
or it could be Karen Gillan! but hey...even thought of that leaves one in a swoon, lol


Anyway, for serious....getting a bathtub fitted that can also be used as shower, with side opening door in the tub or such.
Alas had to get bathtub replaced with walk in shower years ago for Mum, but it was by far best and only way for me to get any kind of relaxation at all.
Dunno who those people are you're going on a date with - the like is for Basil Brush. I've said "boom boom" at the end of a bad joke a couple of time in Germany to my kids - they just look at me with blank faces. I usually follow it up with "please yerselves!", but they've never heard of Frankie Howerd either.
 

SilverbladeTE

Senior Member
Messages
3,043
Location
Somewhere near Glasgow, Scotland
Dunno who those people are you're going on a date with - the like is for Basil Brush. I've said "boom boom" at the end of a bad joke a couple of time in Germany to my kids - they just look at me with blank faces. I usually follow it up with "please yerselves!", but they've never heard of Frankie Howerd either.

lol, we're old school ;)
Ah, Saturday's as a kid in the evening in the 70s, sports finished then you had Basil Brush, or Generation Game, then Doctor Who....awesome! :)

Frankie Howard was a *RIOT* :p
did you ever see one of the last things he did, a re-make of his "Up Pompeii" stuff?
O M G....was about crying with laughter at it, buhaha!! :D
 

Jennifer J

Senior Member
Messages
997
Location
Southern California
A date with Bailey Jay! :p

Well, it would be "life changing" as I'd probably keel over and die cause like, just tottering around the house is as much as I can do now.....but I'd die with a smile!: D

@SilverbladeTE , funny. I think you're on to something. I'd take a date with Gerard Butler.:) He's such a rascal and he's single now. Other choices, unfortunately are married such as Josh Holloway (Sawyer from Lost).

My seriously though would be as @Amaya2014 except I'd have the assistant a couple hours a week for as long as the money would last. Also, I'd throw in having one good meal cooked for me.

Too bad 2000 wouldn't go too far. I'm with @Daffodil in seeing 1. Dr. Demeirleir, 2. a personal assistant for a couple of weeks or 3. Support ME/CFS foundation

Thanks @Skippa!:) It was fun to dream.

Edit: spelling Silverblade right.
 
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Gingergrrl

Senior Member
Messages
16,171
I just did this last week and purchased a brand new motorized wheelchair for $1500 after being granted a few discounts by the medical supply store who were very kind. It has been a game-changer in my ability to go anywhere in the apt without someone having to push me. No matter what I need or where I need to go in the apt, I can now do it on my own. Best $1500 I have spent since getting this ill.
 

Gingergrrl

Senior Member
Messages
16,171
I would buy a lightweight electric wheelchair (like a foldawheel or a kdsmartchair) so I could leave the house by myself for the first time in 11 years. That would be awesome.

@Apple Is it an option to buy one? I have only used mine inside the apt so far but have not left my home on my own since the end of 2014. When I get brave enough, I will test out taking the electric wheelchair down to the lobby of our bldg by myself. Am not strong enough to open our front door, and couldn't hold it open while maneuvering the chair, but if someone helps me with that part, I am certain I could get it to the elevator and down to the lobby (which would be very exciting in my world LOL!)
 

Apple

Senior Member
Messages
217
Location
UK
@Gingergrrl Not really. I am trying to save up some money, but that's more for seeing an M.E specialist as my health is poor and there is no help where I live. Plus I'm 95% housebound so it just wouldn't get used enough to justify the cost, unfortunately. The cheapest one I can find that's suitable is £1800-£2000 ($2500-$2800) which is a lottt of money to me. It's more expensive than my mums car! :wide-eyed:

I'm so happy that it's improving your quality of life though :)
 

Gingergrrl

Senior Member
Messages
16,171
@Gingergrrl Not really. I am trying to save up some money, but that's more for seeing an M.E specialist as my health is poor and there is no help where I live. Plus I'm 95% housebound so it just wouldn't get used enough to justify the cost, unfortunately. The cheapest one I can find that's suitable is £1800-£2000 ($2500-$2800) which is a lottt of money to me. It's more expensive than my mums car! :wide-eyed:

@Apple It might be possible to find a cheaper one if you do some research and I have a thread on PR (can try to find it if it would be helpful) where people gave me a lot of great ideas. The one I wanted I was originally told would cost $3500 which we declined but then I found it for $1500 which is pretty reasonable for a brand new motorized chair in the U.S. I have no idea how this compares to other countries. I am housebound except when driven to doctor appts or important family events. I am using the chair exclusively inside the apt so far to get from room to room so no one has to push me in my manual wheelchair. It not only brings independence but if everyone is busy, not home, or sleeping, I can still move about as I need to which is amazing.

I'm so happy that it's improving your quality of life though :)

Thanks and I can't rave about it enough LOL. The only thing better would be if I could walk normally again on my own.
 
Messages
15,786
If I didn't already have my mobility scooter, that would be my #1 choice. I've had wonderful experiences with it and not a single regret.

#2 - Stair lift, so I can go up and down the stairs without being totally wiped out by it.

#3 - Whole Exome Testing, to see what's lurking within