Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Identities and the Internet

Discussion in 'Latest ME/CFS Research' started by Dolphin, Jun 11, 2016.

  1. Dolphin

    Dolphin Senior Member

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  2. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    It's not terrible, but it's rather hypothetical/superficial - observations from the outside with no attempt to gather information systematically.

    I very much disagree with the observation that the "virtual community of sufferers represents a more severely affected segment of the disease-population", on the contrary - the most severe are bedbound, often do not have the capacity to participate at all. If we hear about the severely affected, it is through their family/friends. If the author engaged with the community at all, in any sort of real depth, they would know this.

    PS, Gesine Kuspert Hearn if you ever read this, feel free to ask questions.
     
  3. green_monster

    green_monster

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    i would love to contrbut to discussion more but i cant becausw my brain doesnt work properly

    when it works better i have to prioritize and unforyunately participating in forum discussions has to be low priority

    things like food and shower comes first
     
    Mel9, Jennifer J, Asa and 2 others like this.
  4. dreampop

    dreampop Senior Member

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    It is terrible....its amongst the most self-indulgent crap I've ever read. An sociologist musing, totally unscientifically, actually remarkably unscientifically, about her observations. Casually lumping things together: patients, diseases, national behaviors. No evidence, but its cool because its a "functional" so people can just abandon logic. This is why not all doctorates are equal.

    I can see someone writing something like this about Parkinson's in the 19th century. "I have observed the shaky sick, for which their is no biologic origin to the shake, in England and in France and their attempts to understand their shaking in the greater context of society and religion. The English shaky tackle their shakes head on..."

    PS Hearn if you ever read this, how did you get such garbage published?
     
  5. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    I agree, I am at the boundarçy between severe and moderate, so I mostly read but seldom partcipate
     
    Jennifer J likes this.

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