Tired of being sick
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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All this means is your blood pressure does not drop.I answered this, but I don't think I have Pots. I'm fine when standing. Sometimes I get dizzy, but that's in the AM.
It doesn't cause PEM. It can cause a different type of exercise intolerance which most ME patients (those with OI) also experience in addition to PEM.POTS can cause every CFS/ME symptom as well
Low blood volume is the cause of every symptom including cluster of symptoms in POTS itself.It doesn't cause PEM. It can cause a different type of exercise intolerance which most ME patients (those with OI) also experience in addition to PEM.
If your heart rate/pulse increases 30 beats per minute over your recorded supine heart rate/pulse ... you have POTS.
It doesn't cause PEM. It can cause a different type of exercise intolerance which most ME patients (those with OI) also experience in addition to PEM.
Plus POTS responds well to doing lots of exercise, because this conditions you cardiovascular system. Whereas ME/CFS patients often do very badly if they exercise.
In a cohort of 17 patients with POTS, the orthostatic tachycardia was greater in the morning than in the evening (38±4 bpm vs. 27±3 bpm; P<0.001), while there was no diurnal difference in the orthostatic change in blood pressure. These data suggest that to optimize diagnostic sensitivity, postural vital signs should be performed in the morning.
Source: here.
Another difference from NMH then, probably. Mine's definitely worst in the evening ... basically the longer I'm upright throughout the day, the worse it gets.The other thing about POTS testing is that it should ideally be done in the morning. This is because POTS symptoms are more exaggerated in the morning:
The other thing about POTS testing is that it should ideally be done in the morning. This is because POTS symptoms are more exaggerated in the morning:
Simply incorrect.Another difference from NMH then, probably. Mine's definitely worst in the evening ... basically the longer I'm upright throughout the day, the worse it gets.
I take it that you guys who are claiming that POTS sufferers respond well to doing lots of exercise do not have POTS or even met someone who has it............
And if you try to say they did and were cured.Well then I'll say, they never had "true" POTS in the 1st place..
Simply incorrect.
The POTS I have is at its best behavior in the morning as far as heart rate and BP goes.
Did you know that I was diagnosed by a cardiologist with all 3 types of POTS?But you have ME/CFS with POTS, so obviously exercise is likely going to make you worse because of the exercise intolerance of ME/CFS.
I know someone with pure POTS, without ME/CFS, and they improved their POTS (as measured by reductions in their poor man's tilt table heart rate jump) from regular running (10 miles a week).
Dr Satish Raj's study of 17 POTS suffers found that they were worse in the morning. Are you sure your measured you POTS properly?
I am not sure how asking whether a measurement was taken properly can be construed as playing psychiatrist.I live with this shit everyday as I'm insulted that you want to try to play shrink with me by questioning my ability to read simple numbers off a blood pressure/pulse machine.
Did you know that I was diagnosed by a cardiologist with all 3 types of POTS?
You are either suggesting I have dyslexia or an inability to read simple numbers correctly.I am not sure how asking whether a measurement was taken properly can be construed as playing psychiatrist.
How can you be diagnosed with multiple subtypes of POTS. The three subtypes of POTS are based on peripheral blood flow levels: low flow POTS, normal flow POTS, and high flow POTS.
Can you explain how you can simultaneously have both low blood flow, normal blood flow, and high blood flow. These subtypes would appear to be mutually exclusive.
First of all it is not "low blood flow, normal blood flow and high blood flow"
POTS researchers have classified POTS in various ways, such as:
"Primary" and "Secondary" POTS;
"high flow" and "low flow" POTS;
and also by the primary symptoms, to wit:
hypovolemic POTS (POTS associated with low blood volume),
partial dysautonomic POTS ("PD" POTS is associated with a partial autonomic neuropathy and is sometimes referred to as neuropathic POTS) and
hyperandrenergic POTS ("hyper" POTS is associated with elevated levels of norepinephrine).
Source: here.