Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

IACFS/ME Primer vs International Consensus Primer

Discussion in 'General ME/CFS News' started by Dolphin, Oct 13, 2012.

  1. Dolphin

    Dolphin Senior Member

    Messages:
    10,737
    Likes:
    28,348
    I would be interested in people's thoughts on the IACFS/ME Primer http://iacfsme.org/Home/Primer/tabid/509/Default.aspx vs International Consensus Primer http://www.hetalternatief.org/ICC primer 2012.pdf .

    I'm particularly interested in terms of using them on a large scale e.g. for sending to all the GPs in a country* - which would you think is better and why?

    I think both have a lot going for them.

    The IACFS/ME website says:
    So it could be improved in a future edition. I'm just about to try to write some comments to send in now but might send in more also depending on points made** (and others could also).

    There are individual threads on the two already:
    International Consensus Primer: http://forums.phoenixrising.me/index.php?posts/303639/
    IACFS/ME Primer http://forums.phoenixrising.me/index.php?threads/me-cfs-primer-for-clinical-practitioners.17476/
    so what I'm particularly interested in are differences between the two.

    * I find it more interesting to discuss countries outside the UK (the UK which already has the NICE guidelines). But people can discuss what they like.
    ** I'm not taking on any responsibility to collate the feedback from this thread and pass it on as I doubt I'll personally agree with every single point raised so it's best for people themselves to submit their own points to do them justice.
     
  2. Dolphin

    Dolphin Senior Member

    Messages:
    10,737
    Likes:
    28,348
    This piece

    contrasts the CDC toolkit with the IACFS/ME Primer.

    Another piece to do a similar thing is:
    I'm not expecting anyone to do anything similar, just thought it was worth mentioning.
     

See more popular forum discussions.

Share This Page