Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
Discuss the article on the Forums.

IACFS/ME Open Letter to Dr. Francis Collins Director National Institutes of Health

Discussion in 'General ME/CFS News' started by Firestormm, Apr 21, 2014.

  1. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,015
    Cornwall England
     
    Last edited: Apr 21, 2014
    Sasha, Simon, WillowJ and 6 others like this.
  2. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,015
    Cornwall England
    Anyone know if Prof. Julia Newton has been a director of IACFS/ME for long? Thanks :)
     
    vli, aimossy and Bob like this.
  3. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,015
    Cornwall England
    Apparently she was asked, then accepted and was elected at the conference in her absence. Cool :cool:
     
    Sasha, Simon, Valentijn and 3 others like this.
  4. Kati

    Kati Patient in training

    Messages:
    4,441
    Likes:
    11,888
    Behavioral research? Ugggghhhhh
     
    Wildcat, beaker, Valentijn and 3 others like this.
  5. CBS

    CBS Senior Member

    Messages:
    1,497
    Likes:
    828
    Couldn't agree more (while banging head on desk...)!!!
     
    NK17, Wildcat, beaker and 2 others like this.
  6. Kati

    Kati Patient in training

    Messages:
    4,441
    Likes:
    11,888
    This is obviously serving Fred Friedberg with his 600 000 coping-for-tired people grant.
     
  7. NK17

    NK17 Senior Member

    Messages:
    592
    Likes:
    1,503
    Kati could "they" mean behavioral research on the wrong doings of the NIH?!
    Of course not ...
     
  8. NK17

    NK17 Senior Member

    Messages:
    592
    Likes:
    1,503
    We the PWME should start compiling a Black Book of our "potential enemies", it should be a testament for future generations to be very careful in whom they put their trust when dealing with what the establishment calls "medical mysteries".
    IMHO ME/CFS is just a step behind MS in being a medical mystery, but I might be wrong.
    Many if not all autoimmune diseases are very complex, heterogeneous and multifactorial in their presentation, etiogenesis and pathogenesis.
    I also think that some long time ME/CFS researcher have focused on the fatigue, because they play the same game that the government has being playing with PWME.
    The problem is that our broken lives are not a game and as PWMS before us we're not only fatigued!
     

See more popular forum discussions.

Share This Page