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IACFS/ME Open Letter to Dr. Francis Collins Director National Institutes of Health

Discussion in 'General ME/CFS News' started by Firestormm, Apr 21, 2014.

  1. Firestormm

    Firestormm Guest

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    Cornwall England
    Last edited: Apr 21, 2014
    Sasha, Simon, WillowJ and 6 others like this.
  2. Firestormm

    Firestormm Guest

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    Anyone know if Prof. Julia Newton has been a director of IACFS/ME for long? Thanks :)
    vli, aimossy and Bob like this.
  3. Firestormm

    Firestormm Guest

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    Apparently she was asked, then accepted and was elected at the conference in her absence. Cool :cool:
    Sasha, Simon, Valentijn and 3 others like this.
  4. Kati

    Kati Patient in training

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    Behavioral research? Ugggghhhhh
    Wildcat, beaker, Valentijn and 3 others like this.
  5. CBS

    CBS Senior Member

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    Western US
    Couldn't agree more (while banging head on desk...)!!!
    NK17, Wildcat, beaker and 2 others like this.
  6. Kati

    Kati Patient in training

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    This is obviously serving Fred Friedberg with his 600 000 coping-for-tired people grant.
  7. NK17

    NK17 Senior Member

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    Kati could "they" mean behavioral research on the wrong doings of the NIH?!
    Of course not ...
  8. NK17

    NK17 Senior Member

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    We the PWME should start compiling a Black Book of our "potential enemies", it should be a testament for future generations to be very careful in whom they put their trust when dealing with what the establishment calls "medical mysteries".
    IMHO ME/CFS is just a step behind MS in being a medical mystery, but I might be wrong.
    Many if not all autoimmune diseases are very complex, heterogeneous and multifactorial in their presentation, etiogenesis and pathogenesis.
    I also think that some long time ME/CFS researcher have focused on the fatigue, because they play the same game that the government has being playing with PWME.
    The problem is that our broken lives are not a game and as PWMS before us we're not only fatigued!

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