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I think we hit the lottery!!

Discussion in 'General ME/CFS News' started by SaveMe, Apr 21, 2011.

  1. SaveMe

    SaveMe *****

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    Dear K****:

    Thank you for your email of April 2, 2011, inquiring into the clinic for complex chronic diseases. I have been asked to respond to you on behalf of the Honourable Michael de Jong, Minister of Health.

    As you are aware, the Ministry of Health asked the Provincial Health Services Authority (PHSA) to present options for a clinic for patients presenting with complex symptomatology possibly related to underlying infectious diseases. As a result of the proposal the Ministry in partnership with PHSA is developing a provincial clinic and research study that will help patients with complex chronic diseases, such as Lyme disease, fibromyalgia, and chronic fatigue syndrome.

    The clinic and research study are in development and should be operating by Fall 2011. The clinic will take referrals from family physicians or other health care providers for patients with symptoms of these chronic illnesses. The goal is to help patients by accurately diagnosing their conditions, providing treatment and helping with ongoing symptom management.

    Additional information about the clinic will be available from your family physician after the development of the program is complete.

    Again, thank you for writing. I appreciate the opportunity to respond.

    Sincerely,

    E+++e H++++y
    Executive Director
  2. boomer

    boomer Senior Member

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    So this relates to the Province of BC only. Lucky Vancouver! Wish Ontario would do this too.
  3. SaveMe

    SaveMe *****

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    no its open to the world!!
  4. glenp

    glenp "and this too shall pass"

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    Thank you for writing to our reps here in BC SaveMe!!! Great going. We got good research coming up
  5. Kati

    Kati Patient in training

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    Save me i got the same letter too
  6. SaveMe

    SaveMe *****

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    oh, and all this time, i thought he was writing specifically to me. grr
  7. insearchof

    insearchof Senior Member

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    SaveMe

    Is this letter a reply to a letter you wrote, or a reply to a letter written by someone else, which you have posted here?
  8. insearchof

    insearchof Senior Member

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    looks like we cross posted, so your "Kevin"? ( which appeared before I formulated this post and which I see you have now edited out)


    Why would a MP from BC Canada respond to a NEw Yorker in terms that suggest they were talking to a local constituent familiar with local health politics?

    Also, in chat whilst we were watching SoK you spoke about how you missed out on getting into a study, and you posted an email reply to you to this effect, in chat.....but that email was addressed to someone called "Rob"

    Sorry, but I am a little confused.
  9. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Wonderful news!! (sounds like it will take ME seriously judging by the talk of possible infectious disease). Thanks for cheering me up!
  10. SpecialK82

    SpecialK82 Senior Member

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    Great News!
  11. SaveMe

    SaveMe *****

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    This message is in response to a letter I personally wrote. Because the clinic is open to the world!! But maybe he mistaken me for a local.
    Lastly, I prefer to remain anonymous.




    I never met somebody as keen as you, looks like someone doesnt have brain fog!! :)
  12. insearchof

    insearchof Senior Member

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    Hello SaveME

    My reading of the letter and the press release material would suggested to me, that it is a provincial and not an international clinic. If it were otherwise, I would have thought that they would not have missed the opportunity to state this clearly ie ''international clinic'' and promote it loudly. I would also have expected an international clinic to be funded with a contribution far exceeding $2M. So I am not so certain that it is an international clinic, or why you might have thought so.

    I agree he may have believed you were a local especially given the following reference, as it seems highly unlikely that Canada would be making information on the clinic to family physicians across the planet.



    Though, I think someone already made mention that this was a pro forma letter. So perhaps the gentleman who responded to you, was himself suffering from brain fog by sending a pro forma letter on a provincial clinic/health matter, to someone in NY, USA.

    I understand your desire to remain anon online, so perhaps it was brain fog that caused you to post the material making reference to your name(s) on two seperate occasions.

    If you are employing an alias for the purpose of corresponding with MPs and medical researchers to protect your identity, then I am afraid that is something I also fail to understand, especially with respect to the later, but thats fine.... only that failing to clarify that here, can make it a little confusing to follow.

    Of course, if you wish to misrepresent who you are to the outside world or here, in order to protect your identity, that is all well and fine.... but please refrain from misrepresenting my remarks by altering my posts when choosing to quote me. If you have trouble with that, then in the future, please do not quote me at all.

    As for brain fog, thankfully I dont suffer with it 24/7. Even so, brain fog does not render one completely unintelligent.

    As for never having met anyone as keen as I, look around. I think you are forgeting where you are.
  13. Chris

    Chris Senior Member

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    I am assuming that the clinic will be set up within the framework of the Provincial Medicare system--that is, free for residents of BC. I know that non-Canadians who need to use Emergency care in Canada are charged, though I think the charge is considerably less than that made by US hospitals. I do not know whether non-Canadians will be able to access continuing care in such a clinic--I frankly suspect not, since it will be paid for by those paying BC taxes. But maybe it will be open, for a charge...

    We from BC hope that it will continue the tradition set by the now retired Bruce Carruthers, of the Canadian Concensus definition, and that it will collaborate with top researchers, including Gordon Broderick of Edmonton, Alberta, one of the stars of the "State of Knowledge" Workshop. Maybe Canada is getting back onto the CFS map! Best, Chris
  14. insearchof

    insearchof Senior Member

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    Hi Chris,

    I suspected that this was also how the clinic would operate. I do not think it is willingly throwing open its doors to the international community.

    That is indeed something to hope for.
  15. eric_s

    eric_s Senior Member

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    Yes, go Canada!

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