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Knitting Equals Pleasure, Despite ME/CFS
Jody Smith loves knitting. Again. She thought her days of knitting and purling were long over but ... she's back ...
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I tested negative to both tests

Discussion in 'XMRV Testing, Treatment and Transmission' started by ladybugmandy, Jan 8, 2010.

  1. JAH

    JAH Senior Member

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    San Jose
    the book that helped me the most when I was at my darkest was When Things Fall Apart, by Pema Chodron. I felt that she was talking directly to me. (I'd send you mine if I could find it!) I find it difficult to read-- but if you can find the strength (which you have)- I hope you will read it. Listen to music, breathe, and don't let go of hope.

    JAH
  2. Marco

    Marco Old blackguard

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    Near Cognac, France
    Hi again

    I appreciate entirely the problem with brain fog. I can easily summarise. The core of the book is to develop a state of mindfulness through various types of meditation. The simplest method being just to practice abdominal breathing, concentrating on the breath and letting any thoughts that arise be acknowledged without judgement and let go again. Aim to practice every day for around 20 mins or as long as you can manage but don't aim to see results - just do it and treat it as your personal time to experience some peace. BTW the case studies in the book include patients with heart disease, severe back pain, hypertension and of course stress - and what could be more stressful than having a very disbling illness that no-one wants to take seriously or treat. So just because it was recommended by a psychiatrist doesn't necessarily make it valueless.

    I just can't help feeling that if your brain fog problems make reading a fairly lightly written book difficult then you are probably not in the best place - at this time - to make a major decision to undertake a course of treatment with any substance known to have significant side effects. The very worst that can happen with the mindfulness practice is that you have a few moments daily relaxation.

    Hope this helps

    Mark

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