Wanted by Llewellyn King: Member of Congress to take up the ME/CFS cause
Sasha reports on Llewellyn King’s campaign to find a lone Congress member to do the right thing ...
Discuss the article on the Forums.

I Remember Me/Stephen Paganetti

Discussion in 'Action Alerts and Advocacy' started by LaurelB, May 6, 2010.

  1. LaurelB

    LaurelB Senior Member

    Messages:
    133
    Likes:
    20
    I wasn't sure where to post this question. I have long wondered what ever happened to the teenage boy in the ME/CFS Documentary I Remember Me. I believe his name was Stephen Paganetti. He was the one who was bedbound and fed with a feeding tube, and had to go to his HS graduation in a gurney.

    It's been about a decade now since that documentary was made, and I wonder how this boy's health progressed. Did he improve? Get worse? Remain the same? I've been unable to find any information.

    I did see a post on another message board long ago saying someone heard he'd gotten better and was now able to travel, etc. But I never was able to confirm this.

    If he did get better, I'd like to know how. :)

    Anyone have any info? Thank you.

    Laurel
     
    *GG* and taniaaust1 like this.
  2. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    6
    Bay Area, California
    I wonder about him all the time Laurel. I hope the rumor is true that he's doing better and traveling.
     
  3. cinderkeys

    cinderkeys

    Messages:
    37
    Likes:
    0
    I did a brief Internet search and didn't turn up anything. I'd love to know what happened to him too.
     
  4. Carrigon

    Carrigon Senior Member

    Messages:
    805
    Likes:
    80
    PA, USA
    I vaguely remember there being a place to contact his parents. I can try and dig it up.
     
  5. Carrigon

    Carrigon Senior Member

    Messages:
    805
    Likes:
    80
    PA, USA
    This is the old address to write to him, but I don't know if it's still any good. It was published in alot of CFIDS places, so it's safe to post this address.
    Stephen Paganetti, Jr.
    P.O.Box 145
    Durham, CT 06422-0145

    I think he's still in Durham. There was an article about his grandmother passing away in 2007 and his name was mentioned, but nothing else.
     
  6. LaurelB

    LaurelB Senior Member

    Messages:
    133
    Likes:
    20
    Thanks, Carrigon. I may just do that and send him a note. If so, I'll let everyone know if I hear back.

    He seems to have completely disappeared.
     
  7. Tammie

    Tammie Senior Member

    Messages:
    761
    Likes:
    19
    Woodridge, IL
    yeah, I too have wondered how he is.....would definitely like to know if you find out anything
     
  8. LaurelB

    LaurelB Senior Member

    Messages:
    133
    Likes:
    20
    Just an update -- I actually wrote him at the address above back in May. I never got a reply. The letter also was not returned to me, so I assume he got it. Would really love to know how he's doing.
     
  9. Gemini

    Gemini Senior Member

    Messages:
    533
    Likes:
    675
  10. LaurelW

    LaurelW Senior Member

    Messages:
    567
    Likes:
    144
    Utah
    Thanks for bringing this up, Laurel. I too have been wondering what happened to him. I'm hoping that he got better and is living a normal life.
     
  11. Julia Rachel

    Julia Rachel

    Messages:
    71
    Likes:
    5
    California
    Hi Laurel!

    Has anyone found out anything about Stephen as of yet?
     
  12. LaurelB

    LaurelB Senior Member

    Messages:
    133
    Likes:
    20
    Hi Julia -- I tried multiple avenues but was not able to contact him. Or, at least, I never got a reply. :(
     
  13. Carrigon

    Carrigon Senior Member

    Messages:
    805
    Likes:
    80
    PA, USA
    I always wondered what happened to him. Haven't heard a thing.
     
  14. Lillybelle

    Lillybelle Senior Member

    Messages:
    110
    Likes:
    88
    Australia
    Has anyone heard anymore about Stephen since this post?
     
    *GG* likes this.

See more popular forum discussions.

Share This Page