Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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I Remember Me/Stephen Paganetti

Discussion in 'Action Alerts and Advocacy' started by LaurelB, May 6, 2010.

  1. LaurelB

    LaurelB Senior Member

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    I wasn't sure where to post this question. I have long wondered what ever happened to the teenage boy in the ME/CFS Documentary I Remember Me. I believe his name was Stephen Paganetti. He was the one who was bedbound and fed with a feeding tube, and had to go to his HS graduation in a gurney.

    It's been about a decade now since that documentary was made, and I wonder how this boy's health progressed. Did he improve? Get worse? Remain the same? I've been unable to find any information.

    I did see a post on another message board long ago saying someone heard he'd gotten better and was now able to travel, etc. But I never was able to confirm this.

    If he did get better, I'd like to know how. :)

    Anyone have any info? Thank you.

    Laurel
     
    *GG* and taniaaust1 like this.
  2. starryeyes

    starryeyes Senior Member

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    I wonder about him all the time Laurel. I hope the rumor is true that he's doing better and traveling.
     
  3. cinderkeys

    cinderkeys

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    I did a brief Internet search and didn't turn up anything. I'd love to know what happened to him too.
     
  4. Carrigon

    Carrigon Senior Member

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    I vaguely remember there being a place to contact his parents. I can try and dig it up.
     
  5. Carrigon

    Carrigon Senior Member

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    This is the old address to write to him, but I don't know if it's still any good. It was published in alot of CFIDS places, so it's safe to post this address.
    Stephen Paganetti, Jr.
    P.O.Box 145
    Durham, CT 06422-0145

    I think he's still in Durham. There was an article about his grandmother passing away in 2007 and his name was mentioned, but nothing else.
     
  6. LaurelB

    LaurelB Senior Member

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    Thanks, Carrigon. I may just do that and send him a note. If so, I'll let everyone know if I hear back.

    He seems to have completely disappeared.
     
  7. Tammie

    Tammie Senior Member

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    yeah, I too have wondered how he is.....would definitely like to know if you find out anything
     
  8. LaurelB

    LaurelB Senior Member

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    Just an update -- I actually wrote him at the address above back in May. I never got a reply. The letter also was not returned to me, so I assume he got it. Would really love to know how he's doing.
     
  9. Gemini

    Gemini Senior Member

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  10. LaurelW

    LaurelW Senior Member

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    Thanks for bringing this up, Laurel. I too have been wondering what happened to him. I'm hoping that he got better and is living a normal life.
     
  11. Julia Rachel

    Julia Rachel

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    Hi Laurel!

    Has anyone found out anything about Stephen as of yet?
     
  12. LaurelB

    LaurelB Senior Member

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    Hi Julia -- I tried multiple avenues but was not able to contact him. Or, at least, I never got a reply. :(
     
  13. Carrigon

    Carrigon Senior Member

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    I always wondered what happened to him. Haven't heard a thing.
     
  14. Lillybelle

    Lillybelle Senior Member

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    Has anyone heard anymore about Stephen since this post?
     
    *GG* likes this.
  15. SB_1108

    SB_1108 Senior Member

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    I just watched I Remember me for the second time. I watched it initially when I first developed ME and now again almost a decade later. It's hard to see how little has changed. I was wondering if there had been any updates from Stephen Paganetti or Kim Snyder?
     
    Advocate and Joh like this.
  16. Maya24

    Maya24

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    Just watched the documentary as well.

    Havent done a proper search but have found this so far.

    "Probably the most amazing partial recovery story I've encountered is that of Stephen Paganetti, the bedridden teenager in the film, I REMEMBER ME, who had to be wheeled to his graduation on a gurney. He is now walking again and is travelling to other states, according to the Connecticut CFIDS Association. "

    http://forums.prohealth.com/forums/index.php?threads/recovery-from-cfs-50-personal-stories.167212/
     
    -Jessie- likes this.

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