1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Patient Experience: "What Bronllys taught me about pacing."
In 2012, Maya, who had tried to cope with ME/CFS on her own for many years, attended a pain management centre in Wales, U.K., and is now able to achieve more through pacing and acceptance, than she had been able to before the course...
Discuss the article on the Forums.

I now also have hypocalcemia and my cholestrol shooting up even more

Discussion in 'Gastrointestinal and Urinary' started by taniaaust1, May 10, 2012.

  1. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,490
    Likes:
    4,244
    Sth Australia
    I managed to get to my CFS specialist today and got my blood test results from a few ago and now I have low calicum.

    Specialist is having me fast and redo the blood tests again tomorrow as he said this needs to be got to the bottom of. He then wanted me to come back next week and discuss it all but due to my difficulty of getting to appointments I wont be going back for a couple of weeks to find out what is going on.
    (my diet is good in calicum... I eat nuts daily, have cheese first thing in the morning with pills which have to be taken with food and also do drink milk and have a big mug of it before bed).

    Quite possibly my vitamin D issues are causing the issues with my calicum as D is needed for calicum absorption.

    My cholestrol too has gone up another full number on the diet which was supposed to lower it:( .. its now 7.9 (ideal level is 5.5) its up from 6.7. As my cholestrol level dont hardly improve at all with cholestrol lowering diets.. my other specialist had thought my cholestrol issue was being caused by my hyperinsulinemia but its just gone up on the low carb diet which deals with my insulin issue.

    I suppose I now will end up being put onto cholestrol lowering drugs for the issue.
  2. aprilk1869

    aprilk1869 Senior Member

    Messages:
    294
    Likes:
    57
    Scotland, UK
    I remember Christine giving you this answer re: your use of molybdenum chelating both copper and calcium. Are you still taking molybdenum?

  3. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,490
    Likes:
    4,244
    Sth Australia
    I have very high copper on hair tests (also many other test indications of it too) .. molybdenum helps to chelate copper as you said.
    I did stop taking the molybdenum a few weeks ago but have had to start it again as my brain is deteriorating again and that molybdenum makes a huge difference to me, so obviously I need to keep taking it for my deficiency of it.

    My molybdenum level is nil on hair tests, so low it dont even show on the graph.. supplementing with it gave me the ability do maths in my head again. (Ive no idea if Ive even managed to get it anywhere in normal range.. all I know is my condition is declining when I stop supplementing it).

    ...

    Christine confused me.. she told me some things on seeing my test results but later contradicted herself in what she said to me in a way which didnt actually match my results at all. (unless I misunderstood... I did really struggle to get my head around her long posts to me).

    ahhh.. thanks.. I just saw that attachment and reading it now (I'd forgotten about much of what she'd said thou I did copy it all down at the time).

    Now Im real confused as Christine said my hair chart indicated high calicuim (it is high on that when compared in ratio to other things it is supposed to balance with) .... thing is .. it is low on my blood test.

    Im so confused by how it could be high and low at the same time and if low in body.. how would it even then end up high in my hair if its low in my blood?

    and due to my issue with Molybdenum and that being low.. one would then expect my calicum to be high rather then low.

    Ive had my blood also checked for copper but my blood level is normal... so i dont understand if I have a lot of copper in my bloodstream..why that didnt show up on my blood test.

    (I had a copper IUD when younger.. so that is why I figured i may have high copper showing up in my hair tests which could be stored in my tissues from way back in the past).

    umm now I see .. that quote has really got me thinking.. maybe taking the molybdenum for just a few months did lower my calicum??? and this is what occurrred..

    If this is the case of what has happened.. then what on earth do I do about having issues with lack of what is an essential trace mineral (molybdenum) which my body obviously needs for my brain but which my body cant seem to get itself without supplmentation of it?

    I wish I'd had blood tests around the time I had the hair test done as only then would I know if my calicum had been low too then on a blood test or if its only happened since Ive been molybdenum supplementing? Now I truely dont know what has gone on.

    Im also opposite to Christines dogs.. as I dont get elevated iron at all and instead have an iron storage issue which has me classifed as being borderline anemic. (that was prior to doing anything to try to chelate the copper out).

    I didnt eat wheat .. and thou one can buy enriched milk.. I very rarely ever have it... probably less then only a few times per year would I drink that.

    So I just dont know what is going on with me.. maybe I will go to the site where christine is and see if she has any more ideas... esp what I should do if trying to get my molybdenum up into some kind of normal range, has screwed up my calicum but I need the molybdenum

    Im trying hard to remember back to my convo with her and if she'd said at all about B2 being able to fix molybdenum issue???
  4. brenda

    brenda Senior Member

    Messages:
    1,195
    Likes:
    566
    UK
    tania

    The body can pull calcium out of the bones and deposit it in the hair, arteries and other areas, but the levels in the blood will be low. Manganese is important to build it up in bones.
    taniaaust1 likes this.
  5. Mya Symons

    Mya Symons Mya Symons

    Messages:
    828
    Likes:
    165
    Wyoming
    It sounds a bit like hypoactive thyroid issues. Are your thyroid levels allright?
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    6,956
    Likes:
    4,084
    australia (brisbane)
    most of your cholesterol doesnt come from diet but is made by the liver, why is your liver pumping out cholesterol? could be trying to correct hormonal problems as hormones are made from cholesterol. High insulin levels can also wreck havoc on hormones, part of the reason why women trying to get pregnent that carry extra weight have difficulty, as it is a sign of insulin resistence which then causes other hormonal issues. Im not neccessarily talking about extra weight but the insulin resistance and hormones, gets into a viscious circle i guess.

    cheers!!!
  7. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,490
    Likes:
    4,244
    Sth Australia
    I dont get why if it is my insulin issue.. why it would be causing issues, when Im currently on such a strict low carb diet to help keep my insulin down... I are breaking my diet at times but only about once a week or once a fortnight.

    One good thing thou right now.. is this new CFS specialist Ive been seeing this year, Im sure when my D results come back, that he's going to be wanting to know why it is so badly low in the first place rather then just say.. always take D supplments or telling me to up the D which I take.

    In the past due to the severity of the D deficiency (my test came back with to note from the lab telling my doctor to have me do a parathyriod test due to the probability i have issues there).. I did have my parathyriod tested for issues but it was fine. (that was a year or two ago).

    Due to the calicum issue now.. he's getting me to redo the parathyriod test... He's going to try to get to the bottom of things. (it makes me happy that my abnormal test results are finally now being paid attention too, I hate not knowing the whys).

    Maybe as you said.. my body is pumping out a lot of cholestrol due to hormonal issues.. (maybe its my bodies attempt to correct the many hormones I have low?)

    I just looked up hypoparathyriodism and saw
    I was getting a heap of facial mucle twitching when going to the specialists yesterday (I wasnt noticing it still happening when I was in the surgery thou).

    Probably just some coincidence thou.
    ....

    Developing hypothyriodism at some point is something which concerns me... as I have family members who had hypothyriodism...
    Im not quite sure now but i did also get gene tested at one point and I may of also had a genotype which also gets that more.

    Ive had lots of thyriod tests done in the past T3/T4/TSH and get that tested every couple of years ..but never the reverse test done
  8. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,490
    Likes:
    4,244
    Sth Australia
    thanks brenda.
  9. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,490
    Likes:
    4,244
    Sth Australia
    Ive been looking today into more of the illnesses and things which can cause low calicum and found out pancreatic cancer can so I started to research that seeing all THREE of my pops brothers and sisters died from that kind of cancer (which isnt supposed to be common so obviously it was inherited in their case).

    Anyway.. Im shocked what Ive just found out about that kind of cancer.. If one has the genes for it there is a 40% of getting it by the age of 70 and its not just caused by genes but also thought to triggered off by also inflammation in the body and cytokines so other things going on in the body can set things off and increases the risk... (and as we know our ME bodies are higher in those things).

    I still think my issue has been caused by my low D but the fact that I may have 40% risk of getting this cancer..Im just feeling stunned and I think I'd best go for some genetic testing at some point.

See more popular forum discussions.

Share This Page