New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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I need info/studies re: The immune system and ME

Discussion in 'General ME/CFS Discussion' started by minkeygirl, Feb 18, 2014.

  1. minkeygirl

    minkeygirl Senior Member

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    A Rheumatologist I saw for my psoriasis refused to treat me because my immune system is a mess. I was thrilled someone finally saw this. She tried to get me a referral to a top guy in the county but my plan denied it and sent me to one of their peeps.

    I saw her yesterday and she is totally clueless about ME/CFS. She is running some labs but I don't have a lot of confidence that even if she finds something she'll know what to do.

    I'm going to appeal the denial. What I want to include is studies or something that will show that our immune system is vastly different from the general population, that numbers that most docs would see as acceptable are not, and that it takes a doc familiar with ME/CFS to interpret things.

    I know, not asking for too much right?

    I know the smart people here can head me to some links I can include.

    Thanks mucho.
     
  2. heapsreal

    heapsreal iherb 10% discount code OPA989,

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  3. minkeygirl

    minkeygirl Senior Member

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    @heapsreal Thanks. She didn't order an NK function test, only NK so without that information I'm not sure if this would be relevant, or would it?
     
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    might make her realise she isnt doing the right tests for you??
     
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  5. minkeygirl

    minkeygirl Senior Member

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    I told her to do NK CEll function. She's clueless.
     
  6. minkeygirl

    minkeygirl Senior Member

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  7. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Would it do any good to point out to them that the rheumatologist found your immune system to be such a mess that she thought you needed to see this particular specialist?
     
  8. minkeygirl

    minkeygirl Senior Member

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    @Little Bluestem That was in the paperwork I gave her and I told her.

    I sent her the study @heapsreal gave me and some other stuff so she is ordering more labs, I don't know which yet.

    Now I need stuff about viruses and ME since she is clueless about that. I'm looking for stuff from Montoya.
     

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