I wrote here recently about severe pressure in the head after going on minocycline. I spoke to my doctor who said he thought it may be a herx and we tried multiple things (ibuprofen, benadryl with no relief). I have been to the ER twice now with no relief.
A ct scan was done which was normal, all medication i am given for headaches doesn't work....and the head pressure continues. I heard about possible intracranial hypertension and went to an opthalmologist. They did extensive eye testing which was all fine. They said that usually with the hypertension the optic nerves swell, but mine are fine.
However, i find it a hell of a coincidence that minocycline can cause this and it started after i started this medication. The opthalmologist recommended i go to a neurologist who i saw today. She said the same thing...that optic nerve swelling usually happens and so she wants to do an MRI and sent me away with yet more pills that do not relieve the pressure. I seriously feel at the end of my rope with this.
I currently live with my parents as my husband and i separated. I have insurance through our marriage until we divorce, but no income currently. I feel constantly spaced out as it is (this has always been one of the worst symptoms of mine). I felt like i could handle a part time job before this head pressure started, but it is so debilitating that i can barely function and i am in pain and i feel like no one listens to me.
It has been a week now since i stopped the medication and i have not had any relief. I also have no emotional support from my family. They get annoyed at me for not having a job and i don't think they truly understand this disease. I just don't know what to do next. I just want all the suffering to stop and i feel too far gone to ever feel better. I know many people probably won't be able to offer much help, but i just needed to vent
A ct scan was done which was normal, all medication i am given for headaches doesn't work....and the head pressure continues. I heard about possible intracranial hypertension and went to an opthalmologist. They did extensive eye testing which was all fine. They said that usually with the hypertension the optic nerves swell, but mine are fine.
However, i find it a hell of a coincidence that minocycline can cause this and it started after i started this medication. The opthalmologist recommended i go to a neurologist who i saw today. She said the same thing...that optic nerve swelling usually happens and so she wants to do an MRI and sent me away with yet more pills that do not relieve the pressure. I seriously feel at the end of my rope with this.
I currently live with my parents as my husband and i separated. I have insurance through our marriage until we divorce, but no income currently. I feel constantly spaced out as it is (this has always been one of the worst symptoms of mine). I felt like i could handle a part time job before this head pressure started, but it is so debilitating that i can barely function and i am in pain and i feel like no one listens to me.
It has been a week now since i stopped the medication and i have not had any relief. I also have no emotional support from my family. They get annoyed at me for not having a job and i don't think they truly understand this disease. I just don't know what to do next. I just want all the suffering to stop and i feel too far gone to ever feel better. I know many people probably won't be able to offer much help, but i just needed to vent