Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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I contacted Erin Brockovitch

Discussion in 'Action Alerts and Advocacy' started by 5150, Aug 4, 2010.

  1. 5150

    5150 Senior Member

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    asked if she is interested in taking on our very big and important cause? Supplied minimum details in the space available ; now will wait to see if she responds.

    will let everyone know the moment i hear anything.

    5150

    sorry, i misspelled her last name in the Title. there is no "t" ... should be Brockovich
     
  2. willow

    willow Senior Member

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    East Midlands
    Sounds Great! Thanks 5150
     
  3. taniaaust1

    taniaaust1

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    Sth Australia
    that does sound great :) .. I'd love to hear a lawyers view of where we should start.
     
  4. 5150

    5150 Senior Member

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    I received a reply email from the Brockovich camp; it was signed by Erin but it was a general reply saying basically"in receipt of your email, honored to get your request, I get a lot of requests so I'm taking time to review things and will get back to you; be assured i will do the best i can do if i am involved." So it probably really was Erin herself and not a spokesperson.

    Basically, I am now "on hold" until next I hear from her. OK, the ball is rolling. We really can use an advocate of her stature.
     
  5. Recovery Soon

    Recovery Soon Senior Member

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    What details did you mention in your email?

    Contamination of the blood supply? ?
     
  6. toddm1960

    toddm1960 Senior Member

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    Rochester, New York
    We sould forward a link to Oslerweb to her.
     
  7. 5150

    5150 Senior Member

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    Here's exact email I sent:

    are you familiar with the XMRV epidemic?It's a retrovirus, as is the AIDS virus, but there seems to be a concerted effort by the CDC, and Health&Human Services, not to want any information about it to emerge. Already the retrovirus has been found in people who have the so-called"Chronic Fatigue Syndrome" that is ravaging people's health in horrible ways. Gradually, our immune system fails, heart disease flourishes, cancers develop, digestive failure happens,inflammation gets out of control, and death is common but is attributed to whatever the specific failure was... not that the failure was due to CFS. The retrovirus is contagious, and threatens our national blood supply, but the Govt is suppressing information. Why? This is right up your investigative skills alley. Will you talk to me about learning more and possibly taking on this big job of finding the Truth of XMRV ?
    ------------------------------------------------------------------------------------------------------------------------------------------------------------------------

    there was limited space provided. i used all of it. of course, there's a lot more to say. next time.

    5150
     
  8. Starlight

    Starlight Senior Member

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    i look sunburned all the time toddm

    i too have this problem flushing and constant s burn look . ihave begun to use very high sunscreen on all days whether i am inside the house or out it is helping a lot .sunlight is very noxious to me but i feel all uv light affects me .
     
  9. 5150

    5150 Senior Member

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    I did follow up and supplied 3 websites: oslersweb , cfscentral , and phoenixrising

    ------------------------------------------------------------------------------------------------------------------------

    I am always pale and sub-norm body temp ; no flushing here
     

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