How horrible for you.. that sounds scary **sending you some hugz if you are accepting of those** I hope you find out what is wrong but swallowing issues can be a ME symptom.. surprisingly its been put at occuring in 55-60% of ME/CFS patients http://wwcoco.com/cfids/bernesx.html Issues with swallowing can happen with mitochrondrial diseases too (so maybe it is that side of the ME issues which affects swallowing in ME.. in which case you may want to consider taking things which can help the mito. Many drugs can make mito issues worst so take care. You may find the following article of diseases in which swallowing is an issue useful http://www.nature.com/gimo/contents/pt1/full/gimo35.html . If I was in your shoes I think I'd be pushing my doctor for a referal to a specialist.. whatever specialist with your other symptoms also being considered, most point towards seeing. be it a mitochrondrial specialist or whatever.