How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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Human Rights Watch blog: FOI & unpublished data from a RCT (PACE Trial)

Discussion in 'General ME/CFS News' started by Dolphin, Jun 12, 2013.

  1. Dolphin

    Dolphin Senior Member

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    final paragraph from

     
  2. Bob

    Bob

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    South of England
    I haven't read it yet, but he knows about ME:

    You've got flu
    And a hangover.
    And you've just run 5 miles.
    How do you feel?

    Like someone with ME

    [​IMG]
     
    Simon, taniaaust1, Valentijn and 2 others like this.
  3. Graham

    Graham Senior Moment

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    It's time that Mr Robert Courtney had a big cheer from us all for his FOI work and his success in widening the audience.
     
    lycaena, Simon, Jarod and 5 others like this.
  4. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Definitely. :balloons: We need people to do things like this. Thank you Mr. Courtney.
     
  5. Daisymay

    Daisymay Senior Member

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    Yes thank you very much indeed Mr Courtney, excellent.
     
  6. Dolphin

    Dolphin Senior Member

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    The blog post brings up issues about the reporting of harms/safety/adverse reactions with the PACE Trial.

    This is dealt with in quite a lot of depth in section 6 of this published paper:


     
    Simon likes this.
  7. Sasha

    Sasha Fine, thank you

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    Tom Kindlon - are you aware of this, Tom? The blog takes comments and there are some very good ones.
     
    Valentijn likes this.
  8. Tom Kindlon

    Tom Kindlon Senior Member

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    Thanks Sasha. Aware of it. I posted a comment but for some reason it hasn't gone up.
     
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