The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Huffington Post - 'It Isn't Just In My Mind!': Four Problems in Diagnosis and Treatment of ME/CFS

Discussion in 'General ME/CFS News' started by Bob, Apr 8, 2016.

  1. Bob

    Bob

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    'It Isn't Just In My Mind!': Four Problems in Diagnosis and Treatment of ME/CFS
    Tayana Simons
    08/04/2016
    http://www.huffingtonpost.co.uk/tayana-simons/diagnosis-and-treatment-of-mecfs_b_9612184.html


    With an accompanying video by Madeleine Lee...

    www.youtube.com/watch?app=desktop&persist_app=1&v=yrwjSvz8NZI

     
    Last edited: Apr 8, 2016
  2. lnester7

    lnester7 Seven

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    @Bob do you have the link to this article (link to previous is there)
     
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  3. worldbackwards

    worldbackwards A unique snowflake

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    Valentijn and Bob like this.
  4. Bob

    Bob

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    lnester7 likes this.
  5. Bob

    Bob

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    You mean the memo that they should be writing nasty, horrible, hateful stuff about us?
     
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  6. worldbackwards

    worldbackwards A unique snowflake

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    Exactly. They'll never get a job at The Times.
     
  7. alex3619

    alex3619 Senior Member

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    I replied:

    On point one about tests: it is correct to say there is no diagnostic test. It is incorrect to say there are no tests. CFS or ME have a small list of major symptoms. Most of those are objectively verifiable, and three of those tests originated in the 1940s, the tilt table test, quantitave EEG and carciopulmonary exercise testing. Half of the patients will fail the tilt table test. We don't have good data on the incidence of qEEG showing problems, its a current research topic, but we know its valuable in individual cases. The CPET using the two day protocol is 95% accurate and shows a unique abnormality. This is not enough to claim its diagnostic, but its easily enough to show severe disabliity in many patients.


    I then made a follow up comment: For some reason Facebook is posting I am affilitated with Griffith University. I am not. I obtained one of my degrees there.

    Oops. Typo.
     
  8. Snowdrop

    Snowdrop Rebel without a biscuit

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    It's not just that it's not just in the mind--it's not in our minds at all.
    It may well be I expect in our brain.

    This issue is a very sticky one and very confusing--it was quite clever for the BPS people to exploit this and conflate the two.
    Mind is almost beyond the purview of neuroscience and more easily studied by physicists--quantum mechanics.

    The brain is simply part of the rest of the body with it's own specialised functions and it gives rise to the mind.
    How it does that is not clear. The brain does not make choices--the mind does. And we all know here--no one choose this illness or it's perpetuation in our system.

    I have a feeling we will need to revisit this issue while the BPS people (to my mind) do not feel they are shuffling the deck chairs just yet.
    The still have powerful connections--in a way they are the minions of the powers that want to obstruct progress.
     

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