1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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HTLV-1 / XMRV Conference starts today!

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by VillageLife, Jun 4, 2011.

  1. eric_s

    eric_s Senior Member

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    Switzerland/Spain (Valencia)
    Have there ever been any sort of epidemiological studies (if that's the right word) with regards to that kind of pathologies in people with ME/CFS? That might be "interesting".
     
  2. eric_s

    eric_s Senior Member

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    Thanks, OS. What i find a bit confusing is that this person in the beginning says that XMRV is a fact and a new human retrovirus and then says that the centers that have found an association between XMRV and ME/CFS or prostate cancer seem to suffer from contamination and cross-reaction. That seems a bit contradictory to me.
     
  3. Overstressed

    Overstressed Senior Member

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    Hi Eric,

    well, to me, it looks like XMRV exists, nobody disagrees with that. What they question for the moment, is that it has been found within the cohort of CFS and prostate cancer. So, things are clear: Mikovits'findings need replication among other research labs, otherwise it doesn't exists in CFS/prostate cancer.

    But I'm confident, to me it looks science has to run it's course. We're a huge step further if you ask me, XMRV exists!

    OS.
     
  4. Bob

    Bob

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    Infection with Human T Lymphotropic Virus 1 is associated with bronchiectasis among Indigenous Australians
    Lloyd Einsiedel, Liselle Fernandes, Tim Spelman, Eduardo Gotuzzo

    Abstract:

    http://www.retrovirology.com/content/8/S1/A38

    http://www.retrovirology.com/content/pdf/1742-4690-8-S1-A38.pdf
     
  5. Countrygirl

    Countrygirl Senior Member

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    I was diagnosed with bronchiectasis in both lungs many years ago, following a bout of pneumonia. Developing severe ME was a life saver in one sense because it abruptly ended my everlasting bouts of respiratory infections. I haven't had a cold since.

    Thank you for posting the link with HTLV. That's very interesting, although I don't think I have the RV, as far as I know.

    I wonder how common bronchiectasis is in the ME population?

    C.G.
     
  6. Francelle

    Francelle Senior Member

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    Bronchiectasis!

    Jemal no knowledge as to what my HIV status is. Maybe I can front up to my doc and ask for an HTLV and HIV test. I think he would fall off his chair! :D I tried to do a brief search last night for research papers related to HIV and Bronchiectasis and either I didnt look hard enough or they are not internet accessible. Do you have any links? Apart from possible retroviruses, I know I have a gene deletion for the Cystic Fibrosis DF508 mutation, so how much this contributes to this malady is anyones guess.

    Justy sorry to hear about your possible Bronchiectasis. My lungs have been great since I had four months of Azithromycin in 2008/9. I do not get colds since the onset of M.E. so hopefully the lungs will stay clear..forever (thats the only plus of having M.E.). Obviously the Bronchiectasis is always there and is a ticking time-bomb ready to be activated with any infection.

    Eric_s - certainly would be very interesting to see what else lurks in M.E. patients besides POTS/OI; IBS; IC; and all the other well documented symptoms.

    Bob Thanks for that abstract. I may email Lloyd Einsiedel and ask if he would kindly forward me a full-text copy of his paper if it is indeed in a full-text form.

    Countrygirl My Bronchiectasis is also bilateral and like you since I had that terrible initial chest infection when the B. was diagnosed while hospitalised in 2008, I havent had further infections. I dont want to ever feel like that again!!
     
  7. Jemal

    Jemal Senior Member

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    I found that quote on Wikipedia:
    http://en.wikipedia.org/wiki/Bronchiectasis

    It is based on this study I think:
    http://chestjournal.chestpubs.org/content/112/5/1202.full.pdf

    If you search Google for "+HIV +Bronchiectasis" you will find a lot more papers. Here's some samples:

    HIV related bronchiectasis.
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC475103/

    Risk factors for the development of bronchiectasis in HIV-infected children
    http://www.ncbi.nlm.nih.gov/pubmed/17722116

    Anyway, I am not saying you have HTLV or HIV, but I think you should test for them to exclude them. My doctor tested me for HIV multiple times, when I approached him with my ME/CFS symptoms. I don't know my HTLV status yet though and I think I will ask for a test.
     

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