New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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HTLV-1 / XMRV Conference starts today!

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by VillageLife, Jun 4, 2011.

  1. eric_s

    eric_s Senior Member

    Switzerland/Spain (Valencia)
    Have there ever been any sort of epidemiological studies (if that's the right word) with regards to that kind of pathologies in people with ME/CFS? That might be "interesting".
  2. eric_s

    eric_s Senior Member

    Switzerland/Spain (Valencia)
    Thanks, OS. What i find a bit confusing is that this person in the beginning says that XMRV is a fact and a new human retrovirus and then says that the centers that have found an association between XMRV and ME/CFS or prostate cancer seem to suffer from contamination and cross-reaction. That seems a bit contradictory to me.
  3. Overstressed

    Overstressed Senior Member

    Hi Eric,

    well, to me, it looks like XMRV exists, nobody disagrees with that. What they question for the moment, is that it has been found within the cohort of CFS and prostate cancer. So, things are clear: Mikovits'findings need replication among other research labs, otherwise it doesn't exists in CFS/prostate cancer.

    But I'm confident, to me it looks science has to run it's course. We're a huge step further if you ask me, XMRV exists!

  4. Bob


    England (south coast)
    Infection with Human T Lymphotropic Virus 1 is associated with bronchiectasis among Indigenous Australians
    Lloyd Einsiedel, Liselle Fernandes, Tim Spelman, Eduardo Gotuzzo

  5. Countrygirl

    Countrygirl Senior Member

    I was diagnosed with bronchiectasis in both lungs many years ago, following a bout of pneumonia. Developing severe ME was a life saver in one sense because it abruptly ended my everlasting bouts of respiratory infections. I haven't had a cold since.

    Thank you for posting the link with HTLV. That's very interesting, although I don't think I have the RV, as far as I know.

    I wonder how common bronchiectasis is in the ME population?

  6. Francelle

    Francelle Senior Member

    Victoria, Australia

    Jemal no knowledge as to what my HIV status is. Maybe I can front up to my doc and ask for an HTLV and HIV test. I think he would fall off his chair! :D I tried to do a brief search last night for research papers related to HIV and Bronchiectasis and either I didnt look hard enough or they are not internet accessible. Do you have any links? Apart from possible retroviruses, I know I have a gene deletion for the Cystic Fibrosis DF508 mutation, so how much this contributes to this malady is anyones guess.

    Justy sorry to hear about your possible Bronchiectasis. My lungs have been great since I had four months of Azithromycin in 2008/9. I do not get colds since the onset of M.E. so hopefully the lungs will stay clear..forever (thats the only plus of having M.E.). Obviously the Bronchiectasis is always there and is a ticking time-bomb ready to be activated with any infection.

    Eric_s - certainly would be very interesting to see what else lurks in M.E. patients besides POTS/OI; IBS; IC; and all the other well documented symptoms.

    Bob Thanks for that abstract. I may email Lloyd Einsiedel and ask if he would kindly forward me a full-text copy of his paper if it is indeed in a full-text form.

    Countrygirl My Bronchiectasis is also bilateral and like you since I had that terrible initial chest infection when the B. was diagnosed while hospitalised in 2008, I havent had further infections. I dont want to ever feel like that again!!
  7. Jemal

    Jemal Senior Member

    I found that quote on Wikipedia:

    It is based on this study I think:

    If you search Google for "+HIV +Bronchiectasis" you will find a lot more papers. Here's some samples:

    HIV related bronchiectasis.

    Risk factors for the development of bronchiectasis in HIV-infected children

    Anyway, I am not saying you have HTLV or HIV, but I think you should test for them to exclude them. My doctor tested me for HIV multiple times, when I approached him with my ME/CFS symptoms. I don't know my HTLV status yet though and I think I will ask for a test.

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