1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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The Chronic Fatigue Initiative and Interview with Mady Hornig
In a follow-up article to the recent IACFS/ME conference presentation in San Francisco, and after speaking at length with Dr. Mady Hornig, 'searcher' delves deeper into the impressive work being completed by the Chronic Fatigue Initiative, and focuses in on those cytokine results ...
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  1. sianrecovery

    sianrecovery Senior Member

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    Manchester UK
    I'm in the UK, and just had a test from the Netherlands (a urine sample) come back positive for HPU - the test measures the amount of haemopyroollactam complex in the urine, and if you have over a certain level, finds you positive. Has anyone else here had this test, and if they did, and did the protocol suggested to alleviate the low B6, manganese and zinc, did it make a difference? I am already on Rich's protocol.
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    Hi,

    If you use the search engine, you will find a long thread on this with a lot of information. It is here somewhere! (I think I might have even started it!) Here is the first post: http://forums.phoenixrising.me/show...-Metal-Chelation&p=34785&viewfull=1#post34785

    Best,
    Sushi
  3. richvank

    richvank Senior Member

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    Hi, sian.

    As you may know, Dr. Klinghardt has developed a treatment he calls "Core" for treating HPU.
    My understanding is that HPU depletes several of the cofactor vitamins and minerals needed by the methylation cycle. Dr. Klinghardt has made the point that HPU needs to be treated before the methylation cycle can be restored to normal operation. I think he may be right about that, and HPU may be one of the causes of no response on methylation treatment that some PWMEs report.

    Best regards,

    Rich
  4. sianrecovery

    sianrecovery Senior Member

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    Manchester UK
    Hi Rich

    What would we do without you? I have noticed some strong detox reactions from beginning the protocol - even passed a kidney stone (I also have a genetic kidney disorder - I know the stone may be coincidence, but its exactly what happened when I started the Perrin technique) but my energy is still better than before I began. I've ordered the Klinghart supplements, and am working with a nutritionalist trained by him, she will advise in January re the KPU. I'm reluctant to stop the methylation protocol now I've started, so I will try both for a bit and see what happens - unless you think I shouldn't. Thanks for your response
  5. richvank

    richvank Senior Member

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    Hi, sian.

    I don't have experience with this combination, so I am learning from you. I wish you the best of results with it!

    Best regards,

    Rich
  6. Cindi

    Cindi Senior Member

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    There is a facebook group called pyroluria.You may find some info there.

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