Please share any thoughts on this. I'm disabled, like many ME/CFS patients. I have Medicare (actually Medicare Advantage). If you have Medicare, your ME/CFS medications and treatments must be a Medicare approved treatment, or you pay out of pocket. Sometimes it's tough getting treatments approved. Any thoughts on how to proceed to get helpful treatments paid for? My thought is that treatments are sometimes not known for ME/CFS but are known -- and approved for -- the component illnesses ME/CFS: POTS, exhaustion, immune dysfunction, viral diseases, etc. What do *you* think? What about bigger guns like Rituximab and Ampligen and antivirals like Valcyte usually used for AIDS? How do you get THOSE paid for (or donated by the pharmaceutical companies)? Any info appreciated. I'm so sick and my Medicare Advantage HMO is resisting paying for care.