1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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How to speak so your doctor will listen

Discussion in 'General ME/CFS Discussion' started by Allyson, Mar 3, 2013.

  1. Allyson

    Allyson Senior Member

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    Australia, Melbourne
    this is useful - thay are busy people after all

    http://healthecommunications.wordpress.com/2013/02/12/how-to-speak-so-your-doctor-will-listen/

    I would add to take a written list of medications you are on
    and a written list of your symptoms as it is hard to remeber them all under pressure.

    I disagree with the part about not researching you issue on-line first - everyone does that now to get an idea where you are at and i would never have been diagnosed if I had not done that first.


    (thanks to genetic alliance for the link
    https://www.inspire.com/member/interests/group/rare-disease-and-genetic-conditions/)

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