redo
Senior Member
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The authors behind Rituximab studies (Mella/Fluge) very much wants others to also do trials (and publish the results). And if you want to do be receiving Rituximab yourself, here's how one could go about doing it (please come with other suggestions if you have any!).
Contact your ME doctor, and ask if he/she would be interested in running a trial of 5 patients on Rituximab. The doctor could use the exact same symptom schemes as Mella/Fluge used. Next step is ethics approval for the trial, and funding. The ME doctor would be doing the ethics approval paperwork, and than you've got to think of some way to get funding. Personally, I think living with ME is torture, so I don't think funding (at least some of the cost) oneself would be something to rule out. Yes, it's expensive, but living with this disease is impossible, so... Other places to check for funding would be NGOs, government grants, etc.
Point is, if we want something to happen, we've got to make something happen. If you have suggestions for doctors who could be thinkable to do it, ways to get funding or other things, than please post.
Contact your ME doctor, and ask if he/she would be interested in running a trial of 5 patients on Rituximab. The doctor could use the exact same symptom schemes as Mella/Fluge used. Next step is ethics approval for the trial, and funding. The ME doctor would be doing the ethics approval paperwork, and than you've got to think of some way to get funding. Personally, I think living with ME is torture, so I don't think funding (at least some of the cost) oneself would be something to rule out. Yes, it's expensive, but living with this disease is impossible, so... Other places to check for funding would be NGOs, government grants, etc.
Point is, if we want something to happen, we've got to make something happen. If you have suggestions for doctors who could be thinkable to do it, ways to get funding or other things, than please post.