For the first few years of my illness I tried to keep up with family activities and seeing friends, working etc... If I wasn't able to attend something my husband wouldn't go either. I always felt terribly bad about this and had and still have alot of guilt. After being sick now for almost 7 years now I have been asking my husband to please go without me as I don't want him missing out on life also. He will go to family events and other things without me because I want him to. My brother in law just bought a very nice boat and my husband goes out with him on some weekends. It is just too long of a day for me to do this. It is beginning to seem as though we are living separate lives now....We are at the point in our lives where we can basically do what we want whether it be traveling or just going away for weekends and I am at the point where I will just end up in bed the entire time. I have had to cut down my hours at work so I now don't have the contact of my co-workers as much. I have gone downhill the past year tremendously and I have no idea why. The fatigue is much more intense and I am having new symptoms. How do you cope with the feelings that your life feels as though it is over and there is no hope of ever feeling well again...I just don't want to start taking all this out on my husband who has been 100 percent supportive of me from day one. I just don't want him to miss out on life because of me but it is so depressing being left behind all the time even though that is what I feel I have to do for him... No one else in my family (siblings, mother etc) don't understand this illness or have ever tried to which makes things much harder. I went to NC on vacation a few weeks ago and spent 70 percent of the time laying in bed...while they all went out enjoying themselves. How do you all cope???