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How to contact Dr. Kogelnik regarding Rituximab treatment

Discussion in 'Rituximab: News and Research' started by bazinga, Aug 30, 2013.

  1. bazinga

    bazinga

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    Hi, this is my first post. I am a 25 year old Norwegian who have been sick for 8 years. I have personally talked to Fluge and Mella as I study medicine at their university hospital (just started, there is a great change I must drop out because of my condition).

    Does anyone know how I can contact Dr. Kogelnik regarding Rituximab treatment? I know it's risky, I know there are no guaranteed results, and I know there are side effects. I am willing to take the risk. I can travel, and I have the money. I am sick of being sick, and I really want to complete my studies, become a doctor and do everything I can to help all of you. My symptoms are very immunologic.

    I have tried contacting info@openmedicineinstitute.org which is listed on their website, but no response so far. Is there another way?

    Thanks in advance!
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque

    Here is all his contact information: http://openmedicineinstitute.org/contact-us/
    SOC likes this.
  3. bazinga

    bazinga

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    It just lists the email I have tried.


    Do you or have you been seeing Dr. Kogelnik? I am wondering because there may be some better way to contact him, maybe directly.
  4. Sasha

    Sasha Fine, thank you

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    UK

    I don't know anything about this but I'm wondering if it would be worth phoning the number given on that contact details page - I know it will be expensive from Norway but you would probably get a real person on the other end who could help you.
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque

    Hi, I gave that link for the phone and fax options. I think you would have better success phoning.

    Best,
    Sushi
  6. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA
    Even phoning they can sometimes take a day or two to respond, and often I will just call three days in a row to try to get someone. I get the feeling they are running a pretty lean ship there. But I agree with Sushi that phone is probably the fastest way to get in touch with them to explore treatment options.
  7. Ruthie24

    Ruthie24 Senior Member

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    Yes, I think they run a very lean ship there and it frequently takes multiple attempts to get a response. Not because they don't care, but because there are so few of them and so many of us and they are all working so hard. Plus, this is a holiday weekend over here so you might not hear from them, even if you call, until sometime later in the week.

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