Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
Discuss the article on the Forums.

How the ME zealots tried to terrorise me Dr Max Pemberton

Discussion in 'General ME/CFS News' started by Cheshire, Oct 31, 2015.

  1. Cheshire

    Cheshire Senior Member

    Messages:
    1,121
    Likes:
    8,999
    The saga continues...

    http://www.dailymail.co.uk/debate/a...g-farce-NHS-doctors-barely-speak-English.html
     
  2. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,946
    England (south coast)
    This is what they will do as they get more and more desperate to defend the indefensible. Attack. Attack. Distract. Distract.
     
    Last edited: Oct 31, 2015
    MEMum, Dolphin, TigerLilea and 13 others like this.
  3. Gijs

    Gijs Senior Member

    Messages:
    641
    Likes:
    1,296
    First they ignore you, then they laugh at you, then they fight you, then you win " Mahatma Gandhi
     
  4. Sidereal

    Sidereal Senior Member

    Messages:
    3,095
    Likes:
    17,172
    Analogy of the year award goes to... :rolleyes:
     
    MEMum, Dolphin, lilpink and 12 others like this.
  5. Sasha

    Sasha Fine, thank you

    Messages:
    12,779
    Likes:
    34,187
    UK
    Thanks for posting this GOLDEN opportunity to get news of the #MEAction petition into a major UK newspaper! :woot:

    I just posted this (held in moderation) and I'd be grateful if people voted it up when it appears, because top-voted posts are seen first when people visit the page (I think - or at least can be when they hit a button):

     
  6. snowathlete

    snowathlete

    Messages:
    3,312
    Likes:
    14,610
    UK
    I almost posted this morning that we should expect this to appear. The bad press that the PACE trial got this week was putting pressure on them, and they dont want to face questions that they cannot defend. The answer is obvious, divert attention to something else, and what better than to attack patients themselves and discredit them?

    It's this sort of thing that really confirms for me that these people are not just sincere about their work and simply horribly misguided about it, rather they know their work is indefensible, and they really dont care about patients one bit. It is all about maintaining their income and status. How distasteful.

    As always though, it is a sign of their desperation, and a signal for us NOT to get caught up in the narrative of their choising, but stick instead to the narrative about the poor methodology of PACE. That is where they dont want to be.
     
    Sea, green_monster, helen1 and 16 others like this.
  7. Chrisb

    Chrisb Senior Member

    Messages:
    1,050
    Likes:
    5,354
    Good to see the scientific language used: "Suggested", "can", "sufferers". Well up to the normal standards of the Mail.

    Hard to understand how someone with a supposed scientific training could write in such terms. Or is it just a case of instructions to Phil Space for 550 words?
     
    MEMum, jimells, green_monster and 2 others like this.
  8. CantThink

    CantThink Senior Member

    Messages:
    775
    Likes:
    1,560
    England, UK
    Oh it's a woe is us story! Us being: him, Sir Simon, and the other doctors/researchers who subscribe to this belief. They just want to try to help us, and we won't accept that we are psychologically ill... Apparently people with chronic Lyme are the same!

    Sadly, I think they cause mental illness or symptoms in some sufferers because of the way we are marginalised, treated or not treated etc. For example, years of not having medical support, and being too scared to admit what is wrong with you because of what might happen to you etc. IMO It messes with your mind and can bring about or exacerbate the flight or fight or PTSD type symptoms.

    Side note, I don't agree with the harassment/threatening nature of what some people purportedly engage in due to their disagreement/frustration etc: (my bolding)

     
    Webdog, MEMum and green_monster like this.
  9. CantThink

    CantThink Senior Member

    Messages:
    775
    Likes:
    1,560
    England, UK
    Just thinking - they are allowed to engage in all this moaning and whinging about how they are targeted.. What about the people who are forced into psychiatric care here and abroad - their stories don't make column inches. :mad: Outside the M.E. community very few people know about this... It's disgusting.
     
    leela, MEMum, meadowlark and 9 others like this.
  10. duncan

    duncan Senior Member

    Messages:
    2,038
    Likes:
    4,467
    I thought the first article on this link a bit telling as well...
     
    Woolie, CantThink and Cheshire like this.
  11. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,677
    Likes:
    21,535
    Germany
    So many ways that ridiculous article can be pulled apart I wouldn't know where to start. My GP happens to be a specialist in psychosomatic conditions, and as part of the examination of my symptoms I agreed to go and see a psychiatrist. Both she and my GP have subsequently excluded psychological causes, in writing, for my symptoms. Throughout I was cooperative and not threatening or abusive to anyone.

    He is painting an imaginary picture of some ME patients, and offering it up to the great british public via mass-media with no evidence (the journalists don't seem to require any). That's all they seem to have left, like a child throwing a last tantrum.
     
  12. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,613
    Likes:
    12,436
    South Australia
    Looks like a rehash of Pemberton's claims of experiences from 2012/2011ish.
    He clearly thinks it is worthwhile rehashing such.

    I will say however, if anyone who has sent abuse to researchers or others in the past is reading this, please stop! You are not helping anyone by doing that.
     
    MEMum, Dolphin, Woolie and 12 others like this.
  13. Sasha

    Sasha Fine, thank you

    Messages:
    12,779
    Likes:
    34,187
    UK
  14. CantThink

    CantThink Senior Member

    Messages:
    775
    Likes:
    1,560
    England, UK
    How long does it typically take to get a comment published? I'm waiting to green arrow click!
     
    Sasha likes this.
  15. Effi

    Effi Senior Member

    Messages:
    1,491
    Likes:
    4,552
    Europe
    I was just thinking exactly the same thing. Many (if not most) of us have gone to a psychiatrist, because we want help and we don't care where we get it - 'who knows? maybe he can help me?'. Psychological causes are then excluded by said psychiatrist, so you're back at square one: no help by no one. The only reason why we keep saying the psychological road leads us nowhere is because we have tried it and it has led us... nowhere. And no, it has not been proven that this is the only solution for us, because PACE is flawed from beginning to end. There is no proof, not in theory, not in reality. Let it go already.
     
    MEMum, Sea, alex3619 and 4 others like this.
  16. Chrisb

    Chrisb Senior Member

    Messages:
    1,050
    Likes:
    5,354
    There does appear to be surprising conformity in the response to any valid criticism. Blame the crazy patients, mention the inconvenience to friends and family, note the involvement of the police.

    How and why do we think all this is co-ordinated? Why should criticism entirely within the scientific tradition meet with such vituperation rather than an honest attempt to address the criticism. The art of spin should be confined to politics. Perhaps it is.
     
    green_monster, alkt and TiredSam like this.
  17. Sasha

    Sasha Fine, thank you

    Messages:
    12,779
    Likes:
    34,187
    UK
    Fantastic opportunity for SHORT messages about Coyne, Tuller, the damning expert quotes from Tuller...

    HUGE opportunity to reach the UK. The Daily Mail is a big deal.

    There's a character limit - my message above barely squeaked in.
     
  18. Riley

    Riley Senior Member

    Messages:
    155
    Likes:
    363
    Louisiana
    "But what’s worst of all is that they pursue people who are desperate to support them. One leading researcher, Professor Simon Wessely, has now given up because of the abuse he received."

    :lol:

    Guys, Simon Wessely is DESPERATE to support us.

    If only it were true that he had given up.
     
    leela, MEMum, Antares in NYC and 10 others like this.
  19. Sasha

    Sasha Fine, thank you

    Messages:
    12,779
    Likes:
    34,187
    UK
    Dunno... still waiting! Thanks for your support. Maybe when one of us spots it we can provide a link here to the post so that it's easy for people to find and vote up. I want that petition out there!

    And if anyone else is going to comment, please do mention the petition - this is a fantastic, fantastic opportunity.
     
  20. CantThink

    CantThink Senior Member

    Messages:
    775
    Likes:
    1,560
    England, UK
    Perhaps he 'gave up' after he got his knighthood!!! :rofl:
     
    MEMum, jimells, green_monster and 3 others like this.

See more popular forum discussions.

Share This Page